My name is Liezel and I have Lymphangioleiomyomatosis (LAM) and I suffer from chronic pain. I wondered if there are others out there?
I know quite a few LAMMIES, as we call ourselves, but not all of us struggle with chronic pain. I understand from the LAM-specialists that pain is a LAM related symptom, but I have not come across many. I would very much like to know what type of pain others experience, where the pain is and how they deal with it.