MEaction

Recently, #MEaction asked their community how long it took to receive their diagnosis of myalgic encephalomyelitis (ME). From over 400 responses from across the globe, the average time from their sample of responses was over 8 years to get a diagnosis.

I’m sure this didn’t surprise anyone in our community. I remember the frustration I felt going from doctor to doctor to doctor. Then 5 years later, I finally got a diagnosis from a doctor whose wife also had #MECFS . A year later I also got a Fibromyalgia diagnosis from a different doctor. And, in 2021, I was diagnosed with an aggressive form of a rare cancer called neuroendocrine cancer. It’s been hard to deal with all three because the symptoms overlap.

How long did it take you to get a diagnosis?

#MillionsMissing 2024: Teach ME, Treat ME