My Movement Disorder #FunctionalNeurologicalDisorder
My husband told me I needed to get over my fear of going out in public. First time eating out, I accidentally hit a lady near the cashiers desk with an uncontrollable arm jerk.
I wasn’t given a diagnosis in 2008 after an RX drug caused a sudden onset of a movement disorder. I told my doctor I needed a diagnosis since I hadn’t received one. Little did I know how doctors handle their iatrogenic errors. Other doctors came to his aid, and soon they invented a story that included, “The problem she is having seems Supratentorial (crazy) to me.”
One neurologist claimed she gave me an MRI review even though she had grabbed the MRI disc out of my hand and rushed out to make sure I wouldn’t follow her. - My new PCP was determined to find help for me. My hopes were high, after enduring this condition for 9 years. I shouldn’t have been surprised when the Movement Disorders specialist walked in with a diagnostic leaflet, claiming I have, “Functional Neurological Syndrome.” The diagnostic leaflet claimed all scans and other investigations were normal. She had missed the radiologist’s “Clinical Correlation advised.” My PCP sent me on an expensive trip and they conducted an EEG/EMG. They noticed I have shaky legs, so that’s the only part of my body that received a diagnosis since the neurologist wanted to include, “Functional suspect.” So it basically means a psychological problem turned into a neurological disorder. At least I reported to MedWatch, and my doctor didn’t. #MedWatch #FDA