Functional Neurological Disorder/Conversion Disorder

My sponsored walk for ##FND ##

My sponsored walk for ##FND ##

Just thought I'd share. I'm creating a video for FND awareness day and would love as many people to be involved as possible - here's all the info

Let's show how many people are affected by FND, how many this disorder has reached, show the need for more help and support to be made available and raise awareness together!

All you need to do is send me a video or voice audio through messenger about how you are affected by FND.
E.g "I have FND" or "My (family member, friend, neighbour) has FND"
You can say your name, or say hi, or just state how your impacted by FND. Whatever you're comfortable with. Also let me know if you'd like me to add your name in the YouTube description as you'll be part of it!
The more people that get involved will hopefully mean we'll reach as many people as possible.

And then I'll put all of your videos into one and together we can show how this really is the most common disorder you've never heard of.

Please have videos in my 25th of March so I have plenty of time to edit them all together 😊

#FunctionalNeurologicalDisorder

This is also a link to my YouTube channel explaining the video -

youtu.be/fo51w9UwYFE

Hi. I'm new here. My name is Nick. I'm 6.3ft & enjoy traveling, swimming, music, being with my cousins when possible, I even want to get into model trains but would require a separate location as we just don't have the room in the house sadly, sometimes Lego's & sometimes games. My situation is unique because I keep getting diagnosed with new findings from different doctors & no one is putting it together. Over the course of a year I've experienced an alarming decline in health. Swallowing issues when I drank water with a throat click, a posture lean that came on from seeking chiropractor help due to pinched nerve that was causing me to fall. I saw genetics prior & all they came up with was a chromosome 4 duplication & a carrier for cep290. They deemed me as having insignificant results. Though the biggest discovery was the mri test & X-ray they ran Where they found porencephaly with a bunch of incidental findings like choroid plexus cysts, mucous retention cyst, & a hemosiderin deposit. The x-ray revealed upper scoliosis, & mild lumbar retrolisthesis. prior to that I was getting told from a board certified neuro physical therapist that it is conversion disorder & she tried to prove it & even When I told her the results of the mri she told me she still thinks it's conversion disorder. Idk maybe it's me & I need to just stop seeing doctors. The amount of spat I've gotten is incredible with my current gp having more care than all previous doctors combined. I even reached out to my geneticist who turned down all evidence I gave with there's nothing I can do for you & I have no recommendations. I even mentioned my cousin who has a speech disorder due to a cyst in his brain. I have 4 appointments coming up & I need someone to piece my history & figure out if we are after all this still missing something here. There's a few unanswered questions from my childhood/birth. This has taken it's toll on my family & I'm just fed up, tired & ready to forget about the medical field because they can't seem to put 2 & 2 together. If you want me to go more in depth as to what went on let me know & I'll post as much as I can on here. Have a good day :).