Functional Neurological Disorder/Conversion Disorder

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Send help... Newly diagnosed FND

Just wondering who here has seizures, just the first Question to begin with?...
#FND #FunctionalNeurologicalDisorder

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Send help... Newly diagnosed FND

Just wondering who here has seizures, just the first Question to begin with?...
#FND #FunctionalNeurologicalDisorder

(edited)
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I'm new here!

Hello!
My name is Allyson Hayden, I was diagnosed with FND in October 2022 and since then my life has changed drastically. I went form being a completely healthy 26yr old to being bound to my bed for 8 months. FND is so misunderstood in the medical field and as a result it took me almost 2 years to find a treatment team that fully understands my condition. I am here to help spread awareness and advocate for myself and others who suffer from this disorder.

#MightyTogether #FunctionalNeurologicalDisorder

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💪🏻‘Courage’ is not ‘Fearless’💪🏻

Having courage is not the same as being fearless. When you complete a task despite being absolutely terrified, that is true courage! 💪🏻

#MightyMoment #PositiveThinking #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #FunctionalNeurologicalDisorder #JointHypermobilitySyndrome

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🗓️Leap Day with #ChronicPain 🗓️

February 29th is a special day for so many reasons – Leapers get to celebrate their actual birthdays & then, of course, there are some romantic traditions too. Unfortunately, for those of us who live with Chronic Pain & Chronic Illness, Leap Years have a downside too because Leap Day means 24 extra hours of pain & other symptoms so amongst the mystery & magic of today please don’t forget to reach out to those who may be having a difficult time.

#ChronicPain #ChronicIllness #FunctionalNeurologicalDisorder #MentalHealth #MightyTogether #Fibromyalgia #ChronicFatigue #BackPain #Depression #Endometriosis #MightyMinute

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🤯My Brain Is Being Fried🤯

Living with chronic illness & a Neurological disorder - #FunctionalNeurologicalDisorder - is hard enough without having to spend most of the day watching tv & listening to music through noise-cancelling headphones because of the constant noise of power tools, hammering & general noise coming from my neighbours’ flat that is being renovated on the other side of our paper-thin, shared, walls. The none-stop noise & vibrations from heavy items being moved & clattered around constantly is really starting to fry my brain, use #spoons I don’t have & is really, really, grinding me down mentally, emotionally & physically. Which doesn’t help when it’s been a day when I have really needed to rest & take things easy.

I wouldn’t mind so much if this was over a short timeframe or within daytime hours but this has been going on for months now, on random days, with the noise starting at 7am - 8am & not ending until 10pm - 11pm with several hours during the afternoon & early evening where the contractors seem to disappear.

I’m exhausted, stressed, annoyed & feeling like I can’t even get my brain to process things very well. I feel like I’m going to explode from all the noise, frustration & tension that feelings like it’s frying my brain.

#ChronicPain #ChronicIllness #MentalHealth #Anxiety #ChronicFatigue #MightyTogether #CheckInWithMe #Spoonie

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😳What Said What?!😳

When you live with a chronic health condition or disability, especially if you’re a younger looking person, young adult, or an ambulatory wheelchair user, there’s a good chance that you will have been unfortunate enough to have experienced some negative & hurtful comments from people.
There’s the classic comments that people living with Invisible Disabilities will have heard, for example “You don’t look sick.” & “It’s all in your head.”
Then there’s the unfortunate comments that people living with Mental Health conditions such as Depression & Anxiety will have heard, for example “Cheer up.” & “Stop worrying about it.”
And if you’re an Ambulatory Wheelchair User? Wow! The looks alone can be upsetting! I’ve lost count of the number of times I’ve been met by judgemental looks from people when we park our car in a Disabled Parking Space (I am a valid Blue Badge/Disabled Parking Permit holder) because I “don’t look sick/disabled” when I’m sitting in a car. These looks soon change when these people see my wheelchair but by then I’ve already started feeling awkward, embarrassed & like I have done something wrong when all that’s really “wrong” is that I have a neurological disorder which causes debilitating symptoms. It may be a brief moment of prejudice but that is still a brief moment too long in my books. It’s so important that we continue to raise awareness of the various chronic conditions & disabilities because it’s only through making people more aware these issues that change can happen & hopefully people with disabilities & chronic illnesses won’t have to deal with such rude, inappropriate & often upsetting remarks. In the meantime, when we heard comments that are hurtful or prejudice looks, we need to do our best not to let these remarks cause us any further damage or embarrassment – which is something that I definitely still struggle with a lot.
Stay strong, stay Mighty & by the best ‘you’ that you can be!
🧡💙💜💝
#ChronicIllness #ChronicPain #MentalHealth #Anxiety #Arthritis #BackPain #ChronicFatigue #ChronicFatigueSyndrome #FunctionalNeurologicalDisorder #ChronicDailyHeadache #ChronicLungDisease #Disability #ChronicObstructivePulmonaryDisease #ComplexRegionalPainSyndrome #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #Lupus #Fibromyalgia #Grief #ADHD #AnorexiaNervosa #Endometriosis #MightyTogether #MightMinute

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🧡💙 7 Years of Living FND 🧡💙

It’s hard to believe that it’s been 7 whole years since I woke up with debilitating symptoms that it took over 2 years of specialist after specialist & test after test before I finally received a diagnosis of Functional Neurological Disorder (FND).
I’d never heard of this neurological disorder before, nor had anyone else I know, including many of my doctors, which left me feeling confused & lost.
When I was diagnosed with FND I was not given very much information about this debilitating condition other than a couple of websites that the Neurologist scribbled on a torn off scrap of paper. Fortunately the websites that I had been signposted for me – www.neurosymptoms.org & www.fndhope.org.uk – were very helpful & became the turning point for me. Not only did these websites provide me with so much information about FND, they also helped me discover other people who also live with this condition which was a huge help because I realised that I wasn’t as alone as I thought.
I have been so blessed to have met so many amazing people; FND charities & FND Warriors who have helped make me the person I am today.
THANK YOU TO EVERYONE WHO HAS BEEN THERE FOR MY THROUGH MY FND JOURNEY!

#FND #FunctionalNeurologicalDisorder

Functional Neurological Disorder (FND) – A Patient's Guide to FND

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🧡💙 7 Years of Living FND 🧡💙

It’s hard to believe that it’s been 7 whole years since I woke up with debilitating symptoms that it took over 2 years of specialist after specialist & test after test before I finally received a diagnosis of Functional Neurological Disorder (FND).
I’d never heard of this neurological disorder before, nor had anyone else I know, including many of my doctors, which left me feeling confused & lost.
When I was diagnosed with FND I was not given very much information about this debilitating condition other than a couple of websites that the Neurologist scribbled on a torn off scrap of paper. Fortunately the websites that I had been signposted for me – www.neurosymptoms.org & www.fndhope.org.uk – were very helpful & became the turning point for me. Not only did these websites provide me with so much information about FND, they also helped me discover other people who also live with this condition which was a huge help because I realised that I wasn’t as alone as I thought.
I have been so blessed to have met so many amazing people; FND charities & FND Warriors who have helped make me the person I am today.
THANK YOU TO EVERYONE WHO HAS BEEN THERE FOR MY THROUGH MY FND JOURNEY!

#FND #FunctionalNeurologicalDisorder

Functional Neurological Disorder (FND) – A Patient's Guide to FND