So I have EDS (very mild) and Lupus and Bipolar Disorder. My oldest daughter has battled depression but shown only a few markers for the physical genetic disorders. My youngest daughter had major issues with both physical and mental disorders. She died due to complications of EDS December 16, 2018. She was 24. Still a baby in my eyes. I can’t help but feel guilty because I passed it on and I am 50. The grief is terrible. Her daddy died when I was 40. I am seeing my regular psychiatrist and going through therapy. I’m trying to develop a new set of coping strategies. She gifted her body as a donor so maybe the research will help others survive. At her Memorial Service I gave a simple speech asking everyone there to learn about chronic invisible illnesses and educate others about them.
#moreresearch #EDS#griefandguilt