The Mighty Logo

10 Tips to Help You Get Organized After a Pancreatic Cancer Diagnosis

The most helpful emails in health
Browse our free newsletters

A pancreatic cancer diagnosis and the decisions that follow can sometimes feel overwhelming. Patients, and their loved ones, can take control and better understand their options by getting organized.

Here are 10 tips to help:

1. Get the basics from your doctor about your diagnosis.

Some questions you should ask include, “What type of pancreatic cancer do I have? What is the stage? What treatments do you recommend?”

2. Contact Patient Central.

This resource can give you more information about the disease, treatment options – including clinical trials – side effects, finances and additional support.

3. Keep copies of your medical records and lab results.

Having a copy of medical records and lab results are important when meeting with other doctors, and especially when seeking a second opinion. Don’t forget, you have the right to all of your records and lab results.

4. Seek a second opinion.

You have the right to seek a second opinion. The Pancreatic Cancer Action Network strongly recommends seeking a second opinion, as needed, at any point in your diagnosis.

5. Select your healthcare team.

Seeing pancreatic cancer specialists improves outcomes. PanCAN strongly recommends consulting with pancreatic cancer specialists who have experience diagnosing and treating the disease.

6. Learn about treatment options, and consider a clinical trial.

You are your own best advocate. PanCAN strongly recommends discussing your treatment goals with your healthcare team, and knowing all of your options at every stage of your disease. Pancreatic cancer patients who participate in clinical research can have better outcomes. Every treatment available today was approved through a clinical trial. We strongly recommend clinical trials at diagnosis and during every treatment decision. Our Patient Central Associates can perform a personalized clinical trials search for you.

7. Track your symptoms, side effects and questions.

Take notes and then talk to your healthcare team about them. Try providing this information to your doctor before the appointment.

8. Find resources.

Find out what support resources (counseling, navigation services, complementary medicine, etc.) are available through your hospital. An oncology social worker may be particularly helpful in connecting you with resources.

9. Appeal when insurance claims are rejected.

Every insurance company has an appeals process. Make sure to keep copies of all the paperwork you submit.

10. Get support from family, friends and others with the disease.

Support is critical to improve your quality of life and overall well-being. Contact Patient Central to learn about our Survivor and Caregiver Network and to connect with others who are also experiencing pancreatic cancer.

Contact Patient Central for more information about any of these topics, or for answers to your other pancreatic cancer questions. You can also order our free educational packet for more information to help you become informed and get organized after diagnosis.

This article was originally published by the Pancreatic Cancer Action Network. It is republished with permission.

This story originally appeared on Pancreatic Cancer Action Network.

Photo credit: nortonrsx/Getty Images

Originally published: October 10, 2018
Want more of The Mighty?
You can find even more stories on our Home page. There, you’ll also find thoughts and questions by our community.
Take Me Home