posteriorvaultreconstruction

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    Differing Medical Opinions
    #ApertSyndrome

    My 10-month old daughter has Apert Syndrome with a Type 3 skull presentation. Her surgical team wants to do a posterior cranial vault reconstruction with distractors in about a month. As her parents, we feel cautious and have sought second, third and four to opinions. One of these is from Dr. Fearon of the Craniofacial Center in Dallas, TX. He disagrees with my daughter’s surgical team at Riley Children’s Hospital of Indianapolis, IN. He thinks she should have a posterior vault remodeling without the use of hardware. We are unsure how to navigate options and whom to ultimately go with. Any similar experiences? Please help! #posteriorvaultreconstruction #posteriorvaultremodeling

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