Grelief
The feeling you could get after a rare disease diagnosis. When relief and grief collide. We recently heard this word used with reference to a rare disease diagnosis. How did you feel when you first received your diagnosis? Was it relief, grief...anything else?
#RareDisease #PatientVoice #RarePatient #RarePatients #PatientPerspective #PatientJourney #GeneticResearch #RareGeneticDisorders
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