Today was the 1st time I ever heard a Dr say, "EDS? What's that? I've never HEARD of it before." Then asked me to help them understand what I go through and how they can learn more about it. My response began, "That's exactly why it took 46 years to get a diagnosis." Then a 5 minute appointment for an injection turned into an hour briefing of my journey & physical symptoms. I imagine most of you have similar stories. Is there a way we could band together, to create awareness and change? REAL CHANGE? To save others, (including my kids), from having to walk the same relentless and frustrating path #groundswell #EhlersDanlosSyndrome #EDSAwareness #takingbackmypower #WeDeserveBetter
#cause TheWaveBeTheWave
#RealChange