EDS awareness

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    Little Bit of Progress.

    I just thought I would share the first strawberry I picked that I grew on my allotment this year.
    Sometimes progress we make or the things we get achieved in a day can feel as small as this strawberry.
    But even something as small as a strawberry can bring happiness 😊
    Keep at it people, and rest when you need.
    💪🏽🍓 #EDS #ChronicIllnessEDS #EhlersDanlosSyndrome #EDSHT #EDSAwareness #HypermobileTypeEDS #Spoonie #SpoonieProblems #ChronicIllness #progress #happy

    1 reaction 27 comments
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    Hi , just to say hello😁 #EDSAwareness

    I’m new here and I am looking forward to meeting fellow EDS’ers! I hope you have the best day you can 😁

    3 comments
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    Winter is here

    I know this since I feel like a broken werewolf, you know transformed but with out the abilities 😂
    Bed rest is my normal an don’t even want to medicate
    Guess I’m looking to re discover myself to see if the medication is worth it, in other words am I medicating to preserve a broken me or can I do better ?

    But self care has gone down hill an the fog is so fuckin present that I can’t remember what I was thinking a few bloody seconds earlier! Talk about annoying right?
    An no money to boot to pay out of pocket medical treatments that somehow those greedy ass morons ( caugh republican law makers ) have re written the laws to were medical practices can decline state aid now.

    Seriously republicans lawmakers, they make me sick since they sold out an lost all decency when they were duped into believing or willingly fallowed a con man in favor of more money 💰 ( most actual republicans I still happen to think are fairly decent people unfortunately there’s a few bad apples that only care about $💰 )
    Going have to throw that in since my grandparents are republicans but they were tricked by fear tactics an that promise of the 1950’s all over.
    😔
    -We’re all fucked, so they can make a buck- should be the republicans moto eh.

    #ChronicIllnessEDS #EhlersDanlosSyndrome #ChronicPain #EDSAwareness #HypermobileTypeEDS

    4 comments
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    Epideral injections in back experience ?

    So long story short I’m a Eds patient an my backs no good
    Several herniations an yeah can’t walk really
    Also only 34 an weight wise great ( try to keep it in check as extra weight doesn’t help anything )

    So yeah can’t live like this and need releaf to even wash properly etc

    So just did local cortisol injections again
    In the neck this time,
    An even local seditive well did little to help
    Aka it hurt like a 🤬

    So I’m wondering can I ask with some assurance to get a more general anstiesa ( spelling is wrong I think ) to help with local pain during the epidural or is that going to be wishful thinking?

    I don’t want to skip them but seriously I don’t know if I can volunteerly get them unless I’m out cold
    😔
    An I’m quite used to pain
    Still doesn’t mean I volunteerly want to torture myself

    #ChronicIllnessEDS #EhlersDanlosSyndrome #EDSAwareness #ChronicPain #BackPain

    3 reactions 14 comments
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    My mood 🤯

    In between flair ups an yeah just 😳☹️🥺🤯😡🤬😨😴🥱🤪 not sure what my mood actually is since the brain power needed to describe it is too drained. Ah brain fog checkmate old friend
    #ChronicIllnessEDS #EhlersDanlosSyndrome #EDSAwareness #HypermobileTypeEDS

    5 comments
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    Intro

    I created this group in hopes to help others mange there life with EDS and other chronic illnesses. My main goal is to help spread awareness around rare disease/chronic illness. as well as break the stigma around disabled/chronically ill people.

    My name is Alyssa Kelly and i had Hyper mobile type EDS and 6 of its comorbidity. I used to work as a nurse full time but i cannot do that anymore. I have been on a journey to try and figure out what my identity is besides being chronically ill or a nurse. My favorite color is yellow. And i happen to very good at painting and i love it. If you join please feel free to introduce yourself.

    #Intro

    #ChronicIllness

    #EDSAwareness

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    So coke a cola is supposed to make you sad 😢?

    Just was watching tv an the coke commercial aired , the scene was one of all family an friends together experiencing something on a higher level, a relationship of pure bliss couples sharing and raising a family together emphasizing how through all the pandemic as long as you have that ( an a coke ) your ok.

    Unfortunately one that is unattainable to me,
    One I can only dream of,
    One that requires give and take, an I can only take with very little give. ( one that every time I try an help I get new criticism on how I’m just slowing things down or not trying hard enough etc )

    This is my reality as my body fails me in new an exciting way when I need it to be in its best form.

    It festers up feelings alright, one of sadness an a harsh reality that some are truly meant as worthless, flawed , broken, just pawns on this game of life that is mearly a chess board ♟

    Damaged goods 😪
    Thanks coke, I really needed a reminder of what I can not attain

    #EhlersDanlosSyndrome #EDSAwareness #ChronicIllnessEDS #HypermobileTypeEDS #EDSers #ChronicSpinePain #ChronicIllnessEDS #Depression

    6 comments