Sotos Syndrome

Mackenzie Moretter just turned 10. The girl from Shakopee, Minnesota, has a rare genetic disorder called Sotos syndrome that has made it difficult for her to make friends at school, NBC News reported. Sotos syndrome is characterized by developmental delays and rapid growth in childhood. Mackenzie was all set to celebrate her birthday on Saturday, but none of [...]

Growing up, I spent my summers in the woods, making paths with my father on our property. It was fun, exploring and creating trails that would always lead safely home. I had a lot of defining moments on those wooden trails, and I’ve always envisioned life as one big path where big moments and decisions [...]

My daughter is 14 months old. She’s already had an EKG echocardiogram and MRI, genetic and ocular tests, and weekly physical therapy sessions. She has a heart condition, a growth condition, nystagmus, hypotonia… the list goes on and on, but that’s not the part that matters. The part that matters is she smiles. Every. Day. She [...]