specialists

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This just in: things that come out of the oven are hot

I shoved a gob of salmon in my mouth and OMG it was so hot! 🔥 I ended up burning my gums bad enough to blister. But oh gosh it was delicious! It was a very small fillet. Just enough for both of us... But I was still hungry. So I ate 2 peach apricot fig bars. I wanted toast with butter and nooch but I didn't have any spoons left.

My caregiver got me my meds when she got home. I got a Norco, thank goodness. My hips are trash.

When I get home after con I'm gonna set up a few doctor appointments with my specialists. First I'm gonna schedule with the Endo. Then I'm gonna ask my caseworker for help finding pain management. I also gotta find a hip specialist so I can get my hips fixed. Then I gotta schedule with OB gyn. Hopefully the Endo helps get my numbers under control so I stop peeing out sugar which keeps giving me refractory yeast infections. So much to do. I'm sure I'm forgetting something. I'm exhausted and cranky. Bah.

#hangry #specialists #stupidhumantricks #ifeelold

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The Appointment Ritual

Got lots of #specialists ? Me too! To keep myself organized I chunk my appointments so I can get them done. This also allows me to double up on labs by copying whomever needs labs, that way they're seeing me in the same time frame, with the same test results. Most importantly, I have a ritual where I do something FUN after each appointment: buy a sparkly pen, walk to my favourite part of the city, stare at the lake, go to the steam room at the gym. I make sure that the appointment and its seriousness don't take over the rest of my day. It's also my way of celebrating the ability to do something other than be a patient.
#Wegeners #subglotticstenosis #Vasculitis

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