#TetheredSpinalCordSyndrome
I had my Tethered Cord Surgery on September 14th. It is both better and worse post-op than I expected. The hospital experience was hellishly painful, but since arriving home, I’m moving around better than I expected. I am more fatigued and more in pain than I remember being after my C1-C2 fusion (although almost 3 years might have softened the memory). Bowel and bladder seem better, but I am concerned with some heaviness in my legs and some discomfort in my hips like that pre-surgery. The real test for my walking will be leaving the house for my follow-up with my neurosurgeon. For those who have also had tethered cord release surgery: how did it improve your symptoms and how soon did you notice improvement? Did it take a while for the full effect to be seen? I know that there was always the chance of some of the neurological symptoms becoming permanent, but I hope that this is not the case here. I’d welcome any input/ would appreciate hearing your experience with tethered cord release surgery; I believe my was L5-S1 and I had an occult tethered cord, if that helps. God bless… #EhlersDanlosSyndrome #tetheredcordreleasesurgery tetheredciresurgery #laminectomy