ToFSurvivor

I’m a 39 yr/old #CHD survivor & overcomer!

My defect is;

• Tetralogy of Fallot Pulmonary Valve ##CHD Atresia w/ Right Pulmonary Stenosis

• Pulmonary Valve has been replaced 6 out of the 7 times. 5 times since 1989.

• CHF since 2007/2008,

• Class 3 #chf ,

• 27 overall heart operations includ. 7 major open heart.

• 3 major strokes from #CHD issues.

• an ICD

• 2 aortic aneurysms one ascending at 4.2cm and one descending (root) at 5.3cm both are unable to be intervened.

Recently moved from, Portland, Oregon to, Louisiana, and establishing care with a team down in, NOLA.

If you would like to chat or anything, please feel free to reach out! I love connecting with other #CHD patients and families.

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