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What No One Told Me About Waiting for a Transplant

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No one told me that waiting for a transplant is the hardest part about having a transplant. 

Waiting for a transplant is the hardest thing that I have ever done. It takes a toll on you emotionally, physically, and mentally.

Here are the other things no one told me: 

The phone will be your worst enemy and best friend. Every time the phone rings, your heart will stop for a few seconds. You will run to the phone like you have never run before in the hopes it’s a call for a transplant. You will no longer turn your phone off in a meeting. Every time the phone rings and it’s not the call for a transplant, your heart will sink.

You will try your best to stay the healthiest you can, but most likely you will get sicker before better. Trying to keep up with everyday life will be a challenge.

In the beginning, you will try to keep up with your regular life whether it’s going to school or work or keeping up with the kids. But those things will get harder and so will daily tasks.

There are times when you won’t want to deal with anything or anybody whether it’s doctors, tests, or people. You’ll just want to be left alone. Hope and faith is what will get you through. Hope and faith are your best friends for the times when you feel like the call for a transplant will never come or you just get sick of being sick. Hope and faith will get you through the rough days.

Waiting for a transplant is the most humbling thing you will ever do. You start to become grateful for everyday things you’re able to do. Good days are the days when you are able to get up and go about your daily tasks, and bad days are the days when you can barely get out of bed. It takes a toll on you mentally. Being sick and seeing others around you doing things you wish you could do is hard. You need support through this journey. You need people who will to listen to you, who you can vent to, or just be there for you.

When you do get the call for a transplant, it will most likely not be the way you expected it or imagined it. At that moment, your world will be turned upside down. You will experience many emotions, and everything will happen fast.

Make sure to take time to take a deep breath. Getting a transplant will mark a whole new journey; it will change your life. This is just the beginning, and it will get better.

After getting a transplant, your life will change in ways you can’t even imagine. This is the end of a hard journey and a start of a new chapter.

young woman in the hospital

Originally published: November 9, 2015
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