I sit alone and count the failures of my life. A child with severe disabilities = I didn’t grow him properly. Protecting his life from Covid = loss of my job and no income for 10 months and counting. Protecting one life = endangering the security/lives of 3 others. There was no choice to make; however there are so many consequences to fighting for his life and the safety of my family. Did I do the right thing by leaving work that day in June and telling them they had to take it seriously? Did I do the right thing throwing away my career? I’ve always chosen family first, this time was no different, but somehow the punishment doesn’t fit the crime. #RareDiseaseParenting #UltraRareDiseases #COVID19