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What It's Like Living With Von Hippel-Lindau Syndrome

My name is Manuel and I have von Hippel-Lindau syndrome (VHL). In my case, it’s pretty bad in the brain. No matter how hard I wish for it to stop developing tumors, every time I have a surgery they keep on coming back. So far I already had 15 brain surgeries (and yes, also spinal, kidney and eyes treatments… you know, it’s VHL!). Please watch my story in the video as featured in the Columbia Neurosurgery website:

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