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Acute pain list

I suffer more from acute pain than chronic, long lasting problems (and there's nothing 'cute' about it).

I have night cramps which a friend suggested I use potassium citrate for and which seems to help, if I remember to take them (another problem is memory). I have arthritis in my joints, which affects the bones not the calf and other leg muscles as with the cramps and cracking these brings back mobility to them. As mentioned I use a yoga back stretcher for lower back discomfort but I can have pain in the hands with the arthritis, which twists the thumbs and hand into strange positions. Like the cramps the only thing I can do is let the spasm pass and wait for a return to full mobility (I'm sure others will recognise this symptom).

Other problems include digestion in that if I eat or drink certain foods or liquids after a certain time at night (early evening after six roughly), I can guarantee waking up in the middle of the night with serious indigestion, requiring me to get up and spit out certain substances (usually wheat related as it's connected to my intolerance of grain products). When I was younger I could get away with it but as I age everything is breaking down in efficiency.

I used to suffer from migraines but I wouldn't say that they were painful as they knocked me out or left me in delirium, stuck in a no man's land of semi consciousness.

Only the pain of wisdom teeth with ulcers underneath, could be described as excruciating apart from the cramps and arthritis. I remember the first one led to me walking around kicking trees in pain because it was too late to get medical assistance for this kind of problem. I went to my dentist the following morning and he asked if I could wait until the following Tuesday for treatment (this was Tuesday) so through clenched teeth I explained that the pain couldn't wait. Subsequent attacks were never as bad because I knew what to expect.

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Feeling ... just WOW

Just wanted to share that in spite of my "crappie hEDS" body, I feel really good! What made me feel so good? A new razor and my "homemade shower "chair ". Until tonight i hadn't realized how long it had been since i actually enjoyed taking my shower. I've had a lot of mental stuff and been busy helping my daughter door dash that I would put off taking a shower until my head wouldn't stop itching or I felt Eww! Just haven't had the energy. Money has been tight so I hadn't bought me a new razor in some time. Clumsy me dropped it last week and the hooks were the razor head snaps on broke. Sad to say, my legs were getting hairy. With my new razor, favorite body lotion and; "my shower chair", a 5 gallon bucket cushioned with cut to size pool noodle stuck on the bottom of the bucket, I took a leisure shower. Shaved with my new razor and applied my body lotion before drying off. It really moisturizes that way. Put my night gown on and laid on my bed playing on my phone. As I laid there my body didn't register any pain, and I was telling myself how relaxed and ... in awe I felt.
I do apologize this was so long, I don't socialize outside my home except for one friend. Thank you for reading this all!! ☺️

#MentalHealth #EhlersDanlosSyndrome #Abuse #Arthritis #BackPain #ChronicPain #Bursitis #PTSD #Selfcare #Addiction

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Just a mid month reminder for us all..

Remember to show yourself love and kindness. You're important, and I hope this can remind you to show that same kindness to you, as you share with others! 💜
#Anxiety
#PTSD
#MentalHealth
#AnkylosingSpondylitis
#PsoriaticArthritis
#Migraine
#DistractMe
#Depression
#Selfcare
#Arthritis

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Prurigo Nodularis - am I alone?

Hi does anyone else have prurigo nodularis? This condition is driving me insane and I'm crying everyday. I've been fighting it for a few years now on top of my other conditions.

#Arthritis #prurigonodularis #Depression

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Feeling defeated again due to my health

Feeling defeated again. As usual my health has the final say always winning. I have to take another semester off from school. My dad has to help me get dressed, in the bathroom, and every time I get up. I’m also using a walker and 38yrs old. My back is way worse. I’m very still with limited range of motion due to severe sharp shooting stabbing pain. Doc called in a steroid for me. If not helping I’m suppose to go to the ER.

I couldn’t take this class in the summer and can’t take it this fall. I have this class and 1 more to finish my program in child development online. Then I will finally have my bachelors degree. In 2010 I had to drop out for having emergency back surgery due to Cauda Equina Syndrome. Then 10 months later in 2011 I had a 2nd back surgery due to severe congenital #SpinalStenosis . 2013 went back to school at the local community college for early childhood education. Graduated with associates degree 2016 going part time and another medical leave. 2022 decided to finish my bachelors degree online. Now that I’m this close with only 2 classes left I have to take more medical leaves. If I can’t do these practicums I will need to switch majors again. I was looking so forward to graduating May 2026.

Now I’m not sure when I’ll be done with my bachelors degree. It’s been a long road. Even if I can complete these 2 practicums I’m not sure what I’ll be able to do in this field. Not only is my spinal stenosis worse, I have #DegenerativeDiscDisease #Arthritis and now #Scoliosis all in my lumbar region. My cervical spine is bad also but not as bad.

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This morning

I had a video call with my pain specialist. We squeeeeeed about my hips not hurting for a week. She was so happy. She knows how miserable I've been.
Then I said now that my hips are fine, I am fully aware of how awful my back hurts. I'm supposed to have a MRI of my lumbar and then we're gonna schedule injections. She's also gonna try to help me with the musculoskeletal pain in my haunches.
I've gotta be the luckiest boy around to have such amazing doctors. My pain specialist was trying to distract me during the cortisone injections and I outed myself as a practitioner of BDSM and I am a leather puppy. She replied "so are you a Dom or a sub? Ooh or a switch." I told her I'm neither. I'm a sadomasochist service puppy who helps people express their emotions in gentle outlets with no fear of being vulnerable. She was so excited to hear. It helped me focus on something other than pain.
She's kink friendly and trans accepting. I gotta let my PCP know about my new doctor's.
#Arthritis #FemoralAcetabularImpingement #Bursitis #BackPain

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I thought I was passed this

I was diagnosed with BPD at 14. My symptoms were extremely severe for a long time, but I’ve been in remission for years. I am 37. I also have CPTSD, OCD, generalized anxiety disorder and panic attacks, Major depressive disorder, Dysthymic disorder, ADHD, Fibromyalgia, Degenerative disc disease, Arthritis, Spinal stenosis, And other chronic illnesses that involve immense pain and other challenges. I’ve done a lot of work to reach a place of stability and I’ve been doing pretty OK. I got sick last year and I haven’t gotten better. It might be long Covid. I used to live an extremely active life, and now I can’t the body that I was in and the person that I was is no more I am grieving the life. I thought I would have and I am grieving who I used to be. I feel lost and alone, but I have been managing. My husband‘s brother is in the Coast Guard stationed in Alaska. We live in south east United States Tuesday. My husband left to go to Alaska for eight days to visit his brother. He won’t be back till next Tuesday. It’s only been a couple of days And I am really struggling. My thoughts are dark and my BPD is making an appearance. A lot of what I am feeling is valid and there’s a lot of unresolved pain that he has caused through our relationship. I thought I had dealt with that is surfacing. I don’t feel like I can trust him anymore. I also caught him in a small lie. Which reaffirms that I cannot trust him. I thought we had a good relationship, but I think I was fooling myself. He is not a bad husband and he’s not a bad Person. But he’s also, not Ben the husband that I need. I realize I have been really really lonely pretty much our whole relationship there’s certain things I ask him to do and he says he will do and then he doesn’t do them. Or things that I tell him are important to me and he says he hears me and then there’s no follow-through.. He knows my story. He knows what I’ve been through and he knows what I struggle with. I told him he should go on this trip because I wanted to be a good supportive wife, but now I regret saying that he didn’t take the time to have conversations and check in with me to see how I was processing the coming up trip and to see what he could do to make sure I would be OK and have a safety plan in place. I really just want him to come home. I need him to come home but he won’t. If the situation was reversed, I would try and get an earlier flight back. And he’s choosing not to. On one side I get it because this trip is important to himand spending time with his brother is important to him but also what about me? What about our family, he keeps saying how he wishes we were there with him, and he keeps experiencing stuff and seeing stuff that he wishes he could share. and that this is hard for him too. But in all the videos and pictures he sent he looks like he’s having a great time and I’m here broken into 1 million pieces with no one to help hold me together. I feel alone betrayed abandoned and left out. Things that I have felt throughout our marriage as a byproduct of his choices he asked me to give him Grace, but I have nothing left to give. I don’t know where this leaves us I think he expects to come home and everything’s just gonna be fine and that’s not the case. I don’t know what to do. I feel so defeated and letdown by the one person that’s supposed to have my back and the one person that supposed to be there for me for better or worse. And he’s not.

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