Irritable Bowel Syndrome (IBS)

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Irritable Bowel Syndrome (IBS)
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We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!

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10 reasons to join the Crohn’s and Colitis Support Group

1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!

You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS

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The Mighty's Crohn's Disease community is 76,000+ people strong, but there's always room for more. Follow along or join in today—whatever is comfortable for you!
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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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worrying about never getting an answer

hope i can find some advice on here!
any idea on what could be causing all this?

i started having symptoms in February 2023, my first symptom was Abdominal pain.
these are some of my current symptoms

abdominal pain (February 16) (achy,stabbing, sharp, cramps, /sometimes spasms)
temperatures/ fevers (99.0-102.1)
joint pain
heart palpitations when standing
dizziness
feeling extremely full after eating something small
nonexistent appetite at times
vomiting/nausea
upper stomach pain (achy/cramps)
abdominal pain getting worse after eating (about an hour after)
Upper stomach pain getting worse after eating (30-40 minutes)
(lower and middle)back pain (cramps and achy)
SOB when standing or sitting up too fast
lightheadedness when standing or sitting up too fast/ everything going black
stomach hurting/ feeling full after a sip of water
waking up with weak arms/legs
my hands feel like puffy and stiff when i wake up?
horrible Salt cravings (I can’t stop 😩)
Headaches upon waking up and last for a couple days
purple nail beds
Fingers curving in
Food feeling stuck in throat

i have been diagnosed with

(AMPS) Fibromyalgia
Joint hypermobility
Chronic pain
Chronic Nausea and Vomiting
Visceral hypersensitivity
Chronic gastritis
Abdominal Pain
Hypoglycemia
Vitamin D below Reference Range
Iron Deficiency Anemia
Elevated Blood-pressure Reading without Diagnosis of Hypertension
Excessive Weight Gain
Tachycardia

possible EDS as well
i don’t fully believe the IBS because i continuously get undiagnosed and then diagnosed with it/ my doctors don’t agree on anything.
i was also diagnosed with somatic symptom disorder but have been cleared from that.
my psychiatrist says they don’t believe it’s “my mind causing my symptoms” because our “minds are powerful but not to this point”

i have seen a GI doctor, rheumatologist, and awaiting to see an endocrinologist.
i have had fevers since i got sick, i believe my highest one was 105F (this happened while i was in a helicopter being transported)
i had abnormal labs back in March 2023 and some of them are still a little strange.
(i think these are all?)
lab work:
low WBC
low MCH
high RDW
low neutrophils
low lymphocytes
high CRP
mildly elevated ESR
mildly elevated Alanine Transferase
(barely) low Creatinine Serum
low Ferritin (has gone up now though)

i have had 4 CT scans (some doctor claimed he saw inflammation in my right side, however i have been told that is not true)
MRE
brain MRI
MRI to rule out arthritis
colonoscopy
Endoscopy
Ultrasounds
HIDA scan
i also have been tested for POTS but was told everything was normal and that i will grow out of it

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Hang in there

A lot of times we don’t see all the things we do everyday. We do things for others so much more than we do for ourselves. And sometimes those things that we do for our families are in turn helping us. Maybe we help out our parents so that we’re not worrying or stressing over the fact that they won’t or can’t do those things for themselves. A lot of times we have to choose between this or that so we can get through our day. And sometimes we just want to disappear from the world so that we can cope with our own troubles. I get it. Not everyone will understand what we are going through but we hang in there. Somehow we hang in there and get through our day. And even on the days we can’t seem to get out of bed. We breath…sometimes breathing is our accomplishment. So to everyone that read this far in my vent…hand in there! Breath! And one last thing….try to love yourself…with all your problems…all your pains and illnesses…all your craziness! #ChronicFatigue #ChronicIllness #Migraine #Fibromyalgia #SpinalStenosis #MentalHealth #IrritableBowelSyndromeIBS #Arthritis #Caregiving #ohsomuchmore

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I'm new here!

Hi, my name is isabella. I'm here because I struggle with IBS and other digestive disorders, I'm hoping to find support here.

#MightyTogether #InflammatoryBowelDiseaseIBD #Depression #EatingDisorder #Crohn 'sDisease#ADHD

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