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When it hurts to...

I think I have craniocervical instability. I'll be going for an MRI soon. I had a CT scan in the ER Monday. I went because I was in so much pain! The findings show bone spurs, arthritis and nerve compression and that was only in my C1 through C6 vertebrae! 🤣

Some days, it hurts to sit, stand, even lie down. Some days, I cry from the pain, other times I cry in frustration. I am slowly having to learn my limitations.

What helps to relieve your pain?#EhlersDanlosSyndrome #POTS #Fibromyalgia #Arthritis #Hypermobility

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Rheumatoid Arthritis

Today I found a great article on managing #rheumatoid Arthritis pain with yoga. It reminded me of how my friend found peace in small, daily practices. Has anyone else tried yoga for pain management?


I have a background in healthcare and have volunteered at several arthritis support groups. My friend's journey with RA taught me the importance of community and support, and I'm here to be a part of that for others.

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Beauty Surrounds Me

Hi all! I’m new to this group and wanted to share one of my photos. I find peace and gratitude in nature and like to create things. Whether it’s crafting, painting, wood burning, working with fibers, or taking photos these are the things that get me through the hard times.
#Lupus #Spoonie #Fibromyalgia #Arthritis #Anxiety #Depression #Endometriosis

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I have a diagnosis #Depression #Anxiety #Hope #Arthritis #Relationships #MentalHealth

I finally have a diagnosis. My doctor was perplexed but x-rays revealed I have severe osteoarthritis. The sudden onset was attributed to 3 weeks in Asian heat and then coming back to our Australian winter.

Treatment options are now many. Mainly pain relief and keeping my hands warm. I will consult a dietitian to see if there are foods that hinder or help. Now that I have some real pain medicine it’s been a lot better.

Getting old is not for wimps. It’s great to finally have an explanation. Thank you so much for your prayers and encouragement.

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How do changes in the weather affect your symptoms?

It’s muggy in my neck of the woods today, and my POTS symptoms are flaring big time. While I love the transition from spring into summer here in the Northern Hemisphere, the change in seasons — and the changes in weather that come with it — can take a toll on my symptoms. On the one hand, the rapid shifts in humidity trigger migraine attacks and my worsening allergies seem to exacerbate all my other chronic illness symptoms. On the other hand, the hot weather and sunshine help me manage my mental illness symptoms better.

How do changes in the weather affect you? These could be seasonal changes, temperature and humidity fluctuations throughout the week, or those days when the weather seemingly cycles through every pattern imaginable. How do you take care of yourself before, during, and after these changes occur? ☀️ 🌧️ ❄️

#MightyMinute #CheckInWithMe #Chatspace #SeasonalAffectiveDisorder #Depression #ChronicPain #Arthritis #Migraine #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #Disability #BipolarDisorder #Lupus #MentalHealth

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Checking in..

How is the month so far?
May was a busy month for me, but I want to share some helpful positivity for June! Please take care of YOU! Happy June! 🌞🏖😎

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I wanted to reference a thought from a book called"The Body Keeps The Score". I'm not asking anyone to read this book just acknowledging it. TY

A little FYI on how trauma is not only stored in the brain but our body. Most of us who are suffering with medical conditions have conditions that stem from the trauma we endured. Headaches, migraines, high blood pressure, seizures, fibromyalgia, reproductive conditions, learning disabilities, arthritis etc #

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Pain levels # asthma. #Arthritis . #Fibro . Polymyalgia rheumatica #sciatica . # migraine

Sciatica is kicking my butt this week. So much to do, but a few minutes here and a few minutes there, and some progress is seen. I checked my garden a bit ago, and a few carrots, onions, and potatoes have sprouted. Tomatoes seem to have settled into their new homes. Few flowers are blooming. These small miracles please me. The sun is shining and the temperature mild.

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