Arthritis

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The Fundamental Five - eat well & enough , hydrate enough , exercise (PT for awhile 4 me) , holistic practice (yoga, meditation+)sleep well / enough

For me this has actually been a lifelong lesson. Amazing how 8 words of advice have been so hard for me to put into practice at times. Sadly in my life sometimes its taken for my body (and/or mind) to scream so loud that its been deafening enough for me to pay attention, yet I have found that even this can ebb & flow.

These days I'm pretty proud of how I’ve been taking care of myself. Its been basically 3+ years of very serious physical and mental struggles and I've learned that in the big picture no one else can take care of me and only I can deeply feel it when I don't.So I guess you could say I’ve been falling in love with myself!

*I've been eating much better (lots fruits, veggies & nuts especially...yet I love my milk and chocolate!)

*I’m exercising &/or doing home PT religiously. My spinal injuries have been part of that screaming voice quite a bit although its getting quieter, and as I told my first PT “I’m only going to get out of this what I put into it!” I've been at the gym regularly which is so empowering (plus its a really social place with great staff & members and I find it soooo mentally uplifting when I leave…knowing I'm taking care of myself)

*I actually was counting ounces of water I drank for a long while however now I'm doing great with that and carry bottles everywhere

*My holistic practice dropped off...then I found Box Breathing which I did before bed for awhile and I'm trying to get back to that, however I’ve found just stopping to breath and ground even for short moments throughout the day really makes a difference

*My spiritual practice is earth based and simple and so my church is nature and I pray to Great Spirit…my level of gratitude and reverence are stronger than ever!

*Now sleep...I will have to plead the fifth if I want to make other people happy about when I sleep, when I turns screens off, how much sleep I get etc…my stretch now is getting ENOUGH sleep and I'm exploring what my body can best function off with less meds. I've been very surprised how much less, yet in doing so I have maxxed myself out a lot recently! (its 6:00 am now, the birds are chirping as my music is lower. As a musician and deejay in college I never stopped being nocturnal. When I worked at the beach I always saw sunrises!!!... Then I went to sleep😉

Bottom line…

Life is a beautiful blessing, its a glorious day today, I got to see Mom & family for four days and that was good for my soul….and I'm going to keep smiling

Listen to your favorite music for a bit today
Go outside and wiggle your bare feet in the dirt
Eat a scrumptious piece of fruit or rich chocolate
HUG A FRIEND OR LOVED ONE…  or many…all day long!
(or a tree if you get out there and don't want to take your shoes off!

#MentalHealth #BipolarDisorder #BipolarDepression #Bipolar1 #Bipolar2 #ChronicIllness #ChronicPain #Disability #Selfcare #COVID19 #AddictionRecovery #Addiction #Arthritis #Headache #Migraine #Anxiety #Eczema #InsideTheMighty #Trauma #ADHD #Cancer #RareDisease #ObsessiveCompulsiveDisorder #BrainInjury #BackPain

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I'm new here!

Hi, my name is bier. I'm here because I've been recently diagnosed with bilateral shoulder osteoarthritis. I'm 46 yo male and very active. History of anxiety and depression and catastrophizing and spiraling how my life will be with potential chronic pain.

#MightyTogether #Anxiety #Depression #Arthritis

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Keeping busy #Fibro #Asthma migraine #Arthritis polymyalgia rheumatica #sciatica

This morning I finished a quilt top. Now it will go to the church quilting group to complete

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I'm new here!

Hi, my name is Palomino69. I'm here because I developed severe swallowing issues, food trapped in gullet, severe dry eyes (Blepheritis) and mouth about 3-4 years ago.
I am housebound due to arthritis, degenerative spine condition and poor mibility. I was wheelchair bound until I had spinal surgery, because my legs kept giving way. Last year I moved my elderly Dad in. I developed pitted oedema briefly in June which went away but ever since then, I've had a weird fizzing feeling in my lower legs, like theres pop in my veins!!?? My Gp ordered bloods and an ECHO last year as he was concerned my heart was the cause. He also prescribed folic acid because my red blood cells are too big and not circulating my nlood properly!!?? He said he wanted an ECG done too along with follow up bloods 6 werks later to check if my red blood cells were better.. I was only supposed to be on the folic acid for 6 weeks. I never heard back from them and the nurses never came back to do follow up bloods or the ECG!. I only found out by chance on looking at my online records that I now have 50% loss of function in my left venticular!!!??, I have a defribrillator implant because I had a cardiac arrest aged 29! I have always had very low BP and have always craved salt since childhood. I sadly lost my amazing Dad 30.12.25, which continues to crush me mentally and emotionally, to the point I am currently suicidal! .For the last 3 months since I lost my Dad, I have been totally unable to swallow solids! Every time I tried 1 small bite, it lodged where a mans Adams apple would be and my throat spasmed violently and agonisingly for up to 2 hours. My mouth salivates excessively as though I need to be sick, but that 1 tiny mouthful, will neither go down or come back up! I have lost nearly 3 stone in weight and currently weigh 49kg. I bought some Ensure drinks last week and initially, when motivated to bother taking nutrtion, I could swallow them. But this week, even fluid is getting stuck!! I cannot even drink tea or water anymore. Which means I also cannot swallow my much needed pain medication anymore. I've also been going extremely lightheaded, dizzy severely off balance and I now get really bad pain down my neck and shoulders, whenever I am upright!? I also developed upper limb tremors, last week, which were initially just in my arms and quite mild. But this week my whole upper body including my head are tremoring constantlly??
But this evening a delivery driver knocked at my window. I stood and took 4-5 paces to the window and Oh my God!! My whole body started tremoring violently, my neck and shoulders became so painful, but then the worst! My heart started racing that violently.I could hear my pulse raging in my ear. Then suddenly silence, then my heart and pulse seemed to return to normal??? The tremors lasted about 20 mins. Could all of these symptoms be POTS?? Any advice would be appreciated.

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Out of control

Right now, I am lying in bed, not really wanting to get up and start the day. My ears are ringing and everything hurts. Can't I just lie here until I feel better?

No, I cannot, because, sadly, I will never feel better having #POTS #Fibromyalgia #Arthritis and #EDS hypermobile type. I also cannot just lie here because I have some control over my day.

I am a homeschool mom of many. I have control over how I handle my pain, but, no control over my pain. I have control over what I can accomplish. I have things I want to do because I enjoy them. I love cooking and going to garage sales. So, I will do those. My pain and multiple other symptoms will flare and I cannot control that. I will probably have to lie flat on my back in bed or in the recliner for hours to recuperate.

Some days it is just too much to deal with and I want to give up. No more tests, imaging, PT, pain, dehydration, various other symptoms. Just no more. During a flare, everything feels out of control and it's depressing. What can I control? Not much really. But, I can have some control over my environment, doing what I need to feel comfortable and not as depressed. I can listen to soothing music, put on my essential oil diffuser, lie in bed and rest, sit quietly and do a word search. I will not let my health control me today.

(edited)
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Sex/Intimacy and Chronic Pain

Hi! I have chronic pain and Arthritis and I just recently started becoming more sexually active with more "rigorous" intimacy. I noticed that every time I am physically intimate with my partner, the day after I am severely low spoons and in more pain than normal. I thought Id put my thoughts out there in case anyone had any tips. I did some research on different positions and ideas but all of these suggestions seemed to put the disabled person automatically in the more submissive position. I personally am a fairly dominant person and am unsure how to go about being intimate, with a more doninant role, whilst minimizing pain. Additionally, ive noticed within myself that there is a level of dissasosiation from the pain of a position while intimacy is occuring which I am concerned about leading to a disassociation of pleasure. I would love to hear any advice or help anyone might have. Thank you
#ChronicPain #Lupus #Arthritis

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I’m new here!

Hi, my name is fanavarro. I'm here because 3 weeks ago I was diagnosed with poly arthritis and I am scared about all the things that are coming my way since I am quite young.

#MightyTogether #RheumatoidArthritis

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