Arthritis

Hi, my name is Mocanaqua00. I'm worried about the peripheral neuropathy getting worse so tht I will be in a wheel chair. I have a walker and a scooter which I use to get around. I take physical therapy at home as much as is offered by Medicaire and United Health Care. I was very active until the pandemic and I am now 91 years old wih arthritis. I live alone but have help for housework and shopping. I have started with tremors lately and feel afraid to go out because of the fear of falling. My balance is not good.
#MightyTogether

Hi, my name is OrganizedMongoose73. I'm here because I've been living with chronic pain for 8 years and want to keep up the good fight.

#MightyTogether #Arthritis #ChronicPain

Hi, my name is Rachel1965. I'm here because I feel all alone. I have family but nobody wants anything to do with someone who is chronically ill. Among other things, the chronic pain in my leg, the stiffness is just too much for me. I have had fibromyalgia since 2018 and it is just getting worse and the arthritis is worse. I have bone on bone knee pain, arthritis in my foot and discs broken in my back. I weigh 336 and tried to lose weight, but it is hard. I have lost my husband 4 years ago which is a story unto itself. It really hit me when in the summertime I couldn't walk because my knee would not hold my weight and my brother refused to take me to the ER because he didn't feel like it. But I am expected to help everyone else out. Today recently I told them I would stay with their dog and dogsit. Well, it is too much. I was there for 5 days and I couldn't do the steps up to their bedroom to sleep, or shower, etc... the pain was just too much. Now they are mad at me because they have 2 other cruise vacations to go onto between now and June and I told them I just can't watch that little dog I love so much anymore. I can't have him at my condo because dogs are not allowed and he barks non stop whenever he hears anything. I also have low kidney function and the only thing that even remotely helps is aleve and I was told not to take it because of my kidneys. I have no other choice. I can't stand the pain. She gets on me everytime. I don't know what else to do. Nobody wants to be around somebody who can't do anything. It is absolutely true. I took care of my husband until he died, I am not going to have anyone that even wants to visit me. I used to be so active, nothing stopped me. I know I shouldn't think about dying, but sometimes I think it is the only way out. nobody truly cares about me. I miss my mom and my grandma. I am 60 years old .

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #OCD #Grief #Arthritis

What Is Water Therapy?

Water Therapy, or Hydrotherapy is a form of treatment that uses water for physical rehabilitation, pain relief, and improved well-being. It works by leveraging water's properties like buoyancy, resistance, and temperature to help with a variety of conditions, such as arthritis, chronic pain, and injuries, by improving mobility, strength, and reducing stress on joints. Not only that, but water therapy can also range from using heated pools for exercise to simple home remedies like warm baths or cold packs.

My mother died in the early hours of Wednesday, aged 91 years, 10 months, one week, and four days old. She lived with me, and I spent much of her final weeks growing concerned about her health following a series of falls.

She was rather frail and struggled to get in and out of bed – hence the falls. She hated hospitals and refused to go there after the first fall. The ambulance service referred her to adult safeguarding, who, following a review, provided her with a hospital bed complete with a remote control that raised and lowered the bed at the touch of a button. This should have made it easier to get in and out of bed. It didn’t work – her arthritis meant that her fingers were not strong enough to press the remote control buttons.

She was upset at losing her king-size bed to such a poor replacement. With a large bed, she could at least position herself comfortably. With the new bed, she always faced the wall – which she hated. I’d help her into bed every night, but somehow, she always ended up in a less-than-comfortable position, and always facing the wall. With ruthless efficiency, I had donated her bed to charity, so reverting back to her old bed was not an option.

She started to dread going to bed. She didn’t like relying on me, but by now, she needed someone to help her back into bed whenever she woke up, which was often. She had heart failure, and her diuretics appeared to kick in whenever she was lying down. We only discovered the benefits of overnight incontinence pants when it was too late.

After the last fall, I was insistent that we go to the hospital, and the ambulance service willingly obliged. At the hospital, they later discovered that she had suffered a hairline fracture of the pelvis. The doctors were also concerned about the bruising caused by the falls. It was while treating her that her heart stopped, and they were unable to revive her.

This leaves me with feelings of guilt. At 91, she was as sharp as she ever was and would have been most upset at being treated like a child. I've seen ageism in its full force time and again when dealing with people – her doctor, the ambulance service. She could answer for herself, but they invariably ignored her, and insisted on talking to me instead.

It’s easy to say that she had a long (mostly) good life (except towards the end). It somehow feels as if this was avoidable – but that’s the thing about care: it’s often just one small misstep, one small oversight, that has a major impact. We think we’re doing enough, but sometimes that’s not enough.

In hindsight, I wish I’d pushed harder to make her more comfortable. I wish I hadn’t been so quick to let go of what she loved just because I thought it was the "right" thing to do. But I know now that nothing is more important than preserving dignity, and that means treating those we care for as partners in their own care – not as people to be managed.

If I could offer one piece of advice to anyone caring for an aging parent or relative, it’s this: Don’t assume that the solutions the system offers will work for them. Advocate for their comfort and well-being above all else. It may mean asking for something unconventional, pushing back on a system that doesn’t seem to have time, or even fighting for what they need when everyone else says it’s unnecessary. But our loved ones deserve more than just the minimum – they deserve respect, agency, and the right to live their last days as comfortably and independently as possible.

As for me, I’ll carry the lessons I’ve learned from my mother’s passing with me, and do my best to honor her memory by being a better advocate for others who are in need. I don’t want anyone else to feel the way I do now – as though something could have been different. Because, in the end, that’s all we really have left to hold on to: the knowledge that we did everything we could.#Caregiving