Arthritis

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Direct messaging frustration # fibromyalgia #Asthma #Arthritis migraine

I get periodic requests to message someone. They usually only say hello. I don’t know if I want to be friends yet. I know nothing about these people or how they decided to contact me. It would be really helpful if those members would tell me something about themselves for example “I’ve seen some of your posts and see you have fibromyalgia. I also fight with this” or anything that would help me know you. Some of these people want to call me dear or beautiful before I have heard anything about them, or they want to switch to Snapchat right away. Let me get to know you a bit and figure out if I want further conversations. In addition, if you never answer my questions but you sure want to know a lot about me, that’s a huge red flag. For those who want a friend, let me know that. For those who think I may have advice or could be a shoulder to cry on, tell me what you’re looking for. I’m not a mind reader.

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Love this so much!!!

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day os still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM until 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You Re the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

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Relationships & defeats where do we discuss that?

Hello, I’m new here and I’m dealing with some really rough relationship issues that I feel have a lot to do with my health. Where do people discuss these challenges on The Mighty? I will admit that tim struggling with the relationship and it’s a 10 year relationship and we love each other very deeply yeah I feel like my medical condition. Makes it too scary or risky for someone to take a chance to be with me based on the numerous systems have been affected by my systemic connected tissue and auto immune disorder. The person I was dating for 10 years that we’re about to be engaged is a physician had a kidney transplant and I think understood too well how much risk I’ve had recently with several near death medical crisis according to my present medical history, my trajectory is not going upward at all. In fact, my immune system has attack more organs systems and now I’m not a surgical candidate, major spinal deformity or hammertoe/bone spur injury.
Im still here. My bf broke up w me. We were supposed to get engaged shortly. Hard week. I think it’s too late I missed my chance. I was in a to me and my kids which took me 15 yr marriage that was destructive to me and my kids. It took me ten years to get a divorce. I’m still dealing with the fallout from that. Dating# #mixedconectivetissuedisease #PrimaryImmunodeficiency #DemyelinatingNeuropathies #MultipleSclerosis #CrohnsDisease #AutoimmuneDisorder
#Epilepsy #Arthritis #DegenerativeDiscDisease #ChronicFatigueSyndrome #Arthritis #DiffuseIdiopathicSkeletalHyperostosis #seronegativearthritis #Scleroderma #Endometriosis #Gastroparesis #ChronicVestibularMigraine #Migraine

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Gasp! The human is giving me scratches!!! Can she read my mind?! 🤣

Cute Lil Rosie Fluff on a lazy Saturday ✨️✨️

I do love my puppy snuggles 💕

Thinking of each and everyone of you, my Mighty's, as we do all we can to improve our lifes, however that looks.
Life is brighter knowing we are Not in this alone, knowing that there is hope, and that we can Lways find beauty on our darkest of days.

We were created this way because our life needed to specifically be ours. We always have the opportunity to improve ourselves and heal past hurts.

One day, tomorrow a new dawn. Deep breaths, bring it on!!!

Or rest up for tomorrow 😉 you know yourself best! ❤️❤️❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #CheerMeOn #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #IfYouFeelHopeless #Upallnight #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #chronicheadache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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I'm new here!

Holà, I'm Sara, 26 years old, living in Paris with quite a well-stocked medical résumé. Between Ehlers-Danlos syndrome, a pseudo Raynaud's syndrome, Arnold's neuralgia, and maybe a bit of arthritis thrown in for good measure, let's just say my body loves complexity. Oh, and I'm still waiting on a diagnosis for a nerve demyelinating disease—if I ever manage to get a full diagnosis, I might as well write a medical textbook!
#MightyTogether #EhlersDanlosSyndrome #DemyelinatingNeuropathies #RaynaudsPhenomenon #Arthritis

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I'm new here!

Hi, my name is Thedesignshed1. I'm here because I have severe arthritis in my hands and fybromyalgia, I’m suffered from complex PTSD and live with generalised anxiety disorder. I am a single parent and carer for 3 children with disabilities, my oldest is 19 with autism, ocd, type 1 diabetes, and challenging behaviour, my 17 year old has epilepsy and my 15 year old has autism and global developmental delay. I’m exhausted all the time and find it hard to get any relaxation time, life has got easier over the years but I’m getting older and more tired. I’d like to put the fun back into life and feel like I’m living instead of just existing.

#MightyTogether #Anxiety #Fibromyalgia #PTSD

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Rosie purposely looking away from my camera, the stinker!!

Her hair is so fluffy from the humidity. She is considered a toy dog but our neighbors dog-and Rosie's boyfriend is a big great dane.
She was scared of him but once I loved on him she knew he was safe. They love playing up and down the gate between them.
Who knew Rosie was a romance at heart?! 😅💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #AnkylosingSpondylitis #ComplexRegionalPainSyndrome #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #MightyPets #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #SuicidalThoughts #RheumatoidArthritis #sciatica #ShinSplints

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