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Why I'm No Longer Afraid of Dying From My Illness

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My nan always used to encourage me to share my emotions. To cry when needed, to express myself and more importantly to explore all emotions and feelings that I experience.

Death is one of those feelings/emotions and something I think about often. As someone living with a serious illness, it crosses my mind every now and again. I wonder at what age my body will make the decision to leave this world. How I will feel and what will happen.

Due to the nature of my illness, I am fully aware that I may not live as long as your average person. In fact, it’s probably highly unlikely that I will. I lay in bed some nights and feel scared by that thought. I fear I’ll be missing out and that I won’t have achieved all I want.

I have been around and confronted with death on various occasions. Grief is the worst part of death, when you lose friends who have been on similar journeys to you — you see them fade away and the next thing you know, they’re gone. Illness was too much for their bodies.

Every time I’ve lost a loved one or friend to illness, my heart smashes into a million pieces. All of a sudden I am overcome with worry and fear about when my illness will be too much for my body, too. I sit and wish disease didn’t have to take control in such a way. The truth is, those of us living with it will have never had a choice and we never will. Our bodies don’t ask for illness, they are forced.

More recently something incredible happened with my thoughts on death. I went through something I will never forget it! While I am not able to share what it was exactly, I can share the realization it made me come to.

During this particular time, I was pushed to the limits in ways I couldn’t even imagine. I was asked to become things I didn’t think I could be and I was put in situations I simply had to get on with.

Then out of nowhere, I was immersed into the thought of death, almost like I was faced with death for a split second. As absurd as this may sound, it was an incredible moment for me. I was shocked and surprised, but at the same time so grateful this happened. I’m grateful because it was a massive moment of realization.

I realized it is only when I die that I will be free from all illness and disease. When I leave this earth, my body will be at it’s purest. My body will be free.

woman standing in front of a car and bullseye sign

It was like the thought of death no longer upset or scared me. I’m not saying I want to die (touch wood that doesn’t happen anytime soon), but it brought me a lot of comfort and I felt a calm I have never felt before.

You see, my body has lived with this disease its whole life. It has been broken from the get-go. There has never been and there never will be a time when I will be healthy. While I have mentally learned to deal with and face all the challenges my body goes through, my body itself has been trapped by disease.

When you are faced with death head-on, it can be the scariest feeling in the world. A world of the unknown. While I used to fear or worry about it, that recent event gave me a real sense of clarity.

The time will come when I am laid to rest. My heart will no longer beat. Blood won’t flow through my veins and my shallow breaths will be no more, but my body will be free. I will be free.

The Mighty is asking the following: What’s one unexpected source of comfort when it comes to your (or a loved one’s) disability and/or disease? Check out our Submit a Story page for more about our submission guidelines.
Originally published: June 2, 2016
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