5 Things I've Learned Living With Fibromyalgia


First and foremost, I’ve learned not everyone with fibromyalgia has the exact same list of symptoms. Each of us can have many of the same symptoms, but some symptoms can also vary greatly. 

Secondly, the biggest favor I’ve learned to do for myself is to choose my daily tasks and activities wisely. I’ve learned some activities are worth the added pain or a fibromyalgia “flare” and others aren’t. It’s something I’m still actively learning to do for my own benefit and the benefit of my family.

Thirdly, “fibro fog” does exist! The brain fog associated with fibromyalgia is personally one of the hardest symptoms I’ve had to learn how to live with. Some days are better then others. On my best days, I can laugh at my lack of words, inability to concentrate and stumbling through sentences. On my worst days, it brings me to tears. When my pain level is elevated, my fibro fog becomes extreme.

Fourthly, getting a diagnosis of Fibromyalgia can sometimes take years. I went through test after test, doctor to doctor and received tons of diagnoses before receiving my diagnosis of fibromyalgia.

I want to add to this the encouragement: Never give up. So many times I felt frustrated and completely worn out. I would throw my hands up, vow to be done with all of it and go through periods without medical care. Don’t give up, you’re worth it.

Lastly, I’ve learned because the list of possible symptoms is so long that it can be very confusing as to which symptoms are fibromyalgia and which aren’t. I’ve learned to pass some things off as just another fibromyalgia symptom, but then I’ll have other symptoms that I’m not sure are related to fibromyalgia or not. We need to find a happy medium because going to the doctor for each and every single symptom can be not only costly but tiresome. Knowing your own body and when to seek medical attention would be helpful. We are our best advocate.

We want to hear your story. Become a Mighty contributor here.

Lead photo source: Thinkstock Images


Find this story helpful? Share it with someone you care about.


Related to Fibromyalgia

older woman and adult daughter sitting on wooden dock looking at lake

When I See My Mom and Grandma in My Fibromyalgia Symptoms

Growing up and even as a young adult into my 30s I remember feeling as if my mother was struggling with something she couldn’t quite figure out. My father recognized a strange difference to her, too. I remember him saying to me one day, “Your mother is barely breathing. She’s having some hard times with [...]
woman staring at the road ahead

Fibromyalgia Isn’t Your Fault, but It Is Your Responsibility

You can’t be blamed for your fibromyalgia, but if you wish to have healthy relationships and manage your symptoms with some success, you do have to take responsibility for it. Having fibromyalgia is a challenge on so many fronts. Pain, fatigue, the mental and emotional stress, the medications and their side effects, the impact on your [...]
panoramic view from boat

I'm Not Anti-Social. I'm Just Tired.

We skimmed across the water in our 9’ inflatable dinghy after spending the morning onshore helping another cruiser launch his sailboat. And we worked for a bit while using the Wi-Fi at the marina coffee shop. The sky a brilliant blue, a light wind rippling the waves and sending salty droplets onto my face. It [...]
Mother and daughter holding hands in field

I Have to Learn to Let Go of the Guilt I Feel as Mom With Fibromyalgia

“Mommy, do you want to come on a walk with us?”  My daughter asks me this every time she goes on a nature hike with her dad. And every time my answer is no. She knows I won’t go, but I suppose she asks just in case one day I’ll say yes. So off they will [...]