Parenting With Fibromyalgia


I am one of you. I have fibromyalgia and I have an amazing 2-year-old son who keeps me going on even the worst of days.

Lately I’ve been thinking though. How do I explain it to him? And what if he develops it?

He already knows if he wants me to play “Legos” with him I can’t sit on the floor like Daddy does, so he moves sofa cushions to where he wants me to sit instead. This is so sweet I could cry every time he does it, but it also makes me sad he is already becoming aware of my limitations. I want my son to think I’m “Super Mummy,” not someone he has to be careful around or take care of.

 

Having had fibro for so long, it’s second nature for my husband and I to work around/with it day to day. The worry I have is my son might think his life has to revolve around it, too. I’m determined my illness will not hold him back the way it does me.

So, I decided I’m going to be honest and start telling him how things are, but keep it from sounding too scary. If I can’t do the types of playing he asks me to do, I will tell him, “I can’t. I have a sore back.” He understands “hurts,” so I should be able to keep it matter of fact and truthful. I definitely don’t want him worrying about me, so I keep my anxiety and panic attacks away from him because that could potentially be frightening.

I do hope he doesn’t have or ever get fibromyalgia. I guess if he does, I’ll know how to help him, but I wouldn’t wish it on anyone, especially not my beautiful boy.

Most of all, I have to focus on how lucky I am to be MumMum to this awesome little person.

We want to hear your story. Become a Mighty contributor here.

Thinkstock image by Nadezhda1906


Find this story helpful? Share it with someone you care about.


Related to Fibromyalgia

How I've Learned to Eat Healthy With Fibromyalgia

Anyone with a chronic illness knows how difficult it can be to rouse yourself to make a home-cooked meal. Chronic pain and fatigue can make it hard to care what you eat, let alone spend time making up meals. Before I was diagnosed with fibromyalgia, I often lived on microwave meals and pasta – easy to [...]
Woman applying lipstick in front of mirror, side view, Illustrative Technique

Why I Always Put on Makeup, Even When I'm Struggling With Fatigue

I’ve been wearing makeup since I was 11, learning how to apply liquid eyeliner (badly!) from magazines, using bright pink eyeshadow, and comparing lipsticks with my Nan. As a teenager, I never went out without a full face of makeup. For me, that meant foundation, concealer, powder, eyeliner, and mascara, at the very least. Since [...]
A woman painting butterflies in the sky.

How Brain Fog Affects My Creativity

I seriously have a problem. Ask my husband; it’s a thing. I can’t stop coming up with ideas. Like, my brain officially doesn’t shut off… ever. Even when my body is completely worn out and I can’t concentrate on what to do next, I am coming up with an idea on how someone could help [...]
Five people in a meeting.

What It's Like Working When You Have Fibromyalgia

You may find yourself asking, “I have fibromyalgia, can I work?” There is no simple answer to this. Like most chronic illnesses, it depends on how you feel and how the condition affects you. However, I have found ways to manage my fibromyalgia while at work. I’ve been struggling with fibromyalgia since 2013 but I [...]