What It's Like to Live With Thyroid Disease


Like any other disease, thyroid disease is difficult to deal with, but unfortunately it is the condition that gets deemed “the good condition” or “the good cancer,” like it somehow doesn’t measure up to some standard of difficulty.

Thyroid disease is hard – even harder because many, including doctors, don’t understand it. So instead of getting proper diagnosis and treatment, we get an antidepressant and are told it’s “all in our head.” No, it’s not all in our head!

Thyroid disease is a lot more difficult to deal with than people realize because, unlike some other conditions, you can’t always see its effects.

Recently we asked a question, prompted by a wonderful article, “If you could use one word to describe thyroid disease, what would it be?” Take a look at the answers that expose the cold, hard truth of thyroid dysfunction:

  • Devastating
  • Exhausting
  • Alone
  • Isolating
  • Challenging
  • I don’t know if one word can simply describe it. All-encompassing would be the closest I could come up with.
  • Roller-coaster
  • Frustrating
  • Frazzled
  • Debilitating
  • Depressing
  • ‘Undead.’ An old horror movie term that describes a being that is neither fully alive, nor completely dead, but in some purgatory of existence, somewhere on a scale between fully alive, and not.
  • Complicated
  • Draining
  • Limited
  • Doubted
  • Torture
  • Life-altering (not in a good way)
  • Dull
  • Lost
  • Misunderstood
  • I do not want it happening to anybody.

Whether anyone chooses to believe us or not, we know how real the symptoms and the struggles are. We are not looking for sympathy, but we are looking for proper treatment.

We want to hear your story. Become a Mighty contributor here.

Thinkstock photo via carlacastagno.


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