Why Giving False Hope About Illness Is Worse Than No Hope
Health anxiety is normal and often part and parcel of serious health issues. Being able to separate the real from the unreal – that’s what matters.
Often people give us false hope, because they think it can help with health anxiety. But I believe false hope is worse than no hope. Why? Because it does not help us learn to live with difficult truths. Yet some people think giving or receiving false hope is better than no hope. I disagree. Let’s look at hope and health.
1. False Hope vs. Reassurance
Once my medical practitioner told me that “things will get easier.” It had been six years since my diagnosis and treatment for breast cancer. For many, this means things will get easier: fewer worries about the cancer coming back and less chances of the cancer coming back. One of the oncologists even said I had been “cured,” while another said all that can be done had been done.
I know comments like my doctor’s are meant to reassure, made with the best of intentions. But I also know they are often meant to pacify what is interpreted as health anxiety, hopelessness, pessimism and cynicisms. What I feel is all of the above and yet none of it.
2. Health Alertness vs. Health Anxiety
If you have been diagnosed with cancer or another life-changing or life-shortening illness, you too, may know the feeling of living with what I call constant “subtitles:”
Nothing is what it is. Nothing is like it used to be. Nothing is like we thought it would be. And we call much into question.
Comments like “But you look so well … you must not worry so much” can be unhelpful and dangerous. They can lure us into a false sense of reassurance, when we need to remain alert to changes in our bodies.
There is a very fine line between health awareness, watching out for red flag signs and irrational health anxiety.
And there is nothing right or wrong about it. There is no blueprint or manual that can tell us how to do it “right.” You, too, probably have had moments of health concerns and feeling unwell. Since my initial cancer treatment I have had many. Thankfully, the symptoms turned out to be related to other things.
Yet these are intensely frightening and dare I say traumatic moments in our lives. Each time (and increasingly so) I have to check in with myself, whether I am over-reacting and whether I will be thought of as a time waster, as someone overcome by health anxiety.
3. Coping With Health Anxiety: Professionally and Personally
And what do I do for a living? I am a psychotherapist and I specialize in supporting people affected by cancer and loss. And people ask me, how do I square that?
- Is it healthy for me “to work with cancer,” when I have been affected by cancer?
- Is that not too close to home?
- Does that not make things worse for me?
My truthful answer? No. Like any other therapist or counselor, cancer or no cancer, I too, have to monitor myself constantly, to see whether I am emotionally and physically fit to do the work. But how can I help others deal with their health anxiety when I, too, experience it? There would be a problem if we were to assume (wrongly in my view), that there needs to be a way of having health or cancer anxiety “sorted… done and dusted … ticked off the list.”
No. Health anxiety is normal and human. What matters is knowing how to face up to it and being able to live with it, without it standing in our way and becoming disproportionately irrational.
4. If You Are Tempted to Give Someone Hope That You Don’t Believe In
It is understandable that we may want to reassure others – for so many reasons. Depending on how close we are, others’ despair can be hard for us to cope with. It is upsetting, especially when we don’t know what to say. We may be tempted to give false hope, anything, to reassure them and us. As I said, it is understandable. But does it really work and help you and the other person?
5. False Hope vs. Meaningful Hope
Coping with health anxiety is about accepting our anxiety and learning to regulate it, so it does not work against our well-being. False hope gets in the way of that process. Instead we need to learn to find meaningful hope in ourselves and in our ability to be able to do the best we can, whatever may happen – illness or no illness.
It’s about hope that somehow, somewhere we will find a way out of the dark moments and places. We must not sugar-coat the truth, which is that we cannot know what is around the corner. There is no point in giving false hope, like it will get easier, because it happens to have been x number of years. Meaningful hope and reassurance can be hard to give and hard to receive.
Meaningful hope is:
- The belief that despite what has happened, we can cope and live well with the here and now and with whatever may come, or not.
- The fearlessness of facing up to difficult possibilities in our lives and not shying away from naming them.
- The supportive silence and acknowledgement that living with subtitles of fear and mortality is not easy and requires constant focus and honest acceptance.
To be able to acknowledge that hope is hard to come by, and to keep meaningful hope is more helpful than any false hope can ever be.
My cancer did return. A local recurrence was eventually identified, after I continued to insist on further investigations. I just had not felt “right.” At the moment I feel OK.
I consider myself as living with cancer, whether there is detectable evidence or not. And I don’t consider that giving in to health anxiety.
Lead photo courtesy of Unsplash