Acid sphingomyelinase deficiency (ASMD)

Hi, my name is Jillian. I’m new to The Mighty and look forward to sharing about the journey we are on with our two children, both diagnosed with an ultra rare and life limiting genetic disease called ASMD.

#MightyTogether #ASMD #NiemannPickDisease #RareDiseaseParenting #SpecialNeedsParenting #asmdwarrior #rarediseasewarrior

Even though I don't have #ASMD , I would love to hear about anyone's experiences with the condition. Just curious!