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Anthony Senerchia Jr., one of the co-founders of the ice bucket challenge died of amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease.


The co-founder of the ALS Ice Bucket Challenge has passed away

Anthony Senerchia Jr.,46, died on Saturday after a years-long battle with ALS.

Here’s a look back at the impact he made:

Senerchia’s efforts helped raise over $115 million

And got 17 million people to advocate for the rare disease.

“We did it and it just was really great to see our community and our town rally around us.”

“At that point it had stuck and it then became the ALS Ice Bucket Challenge.”

Of the more than $115 million raised, $10 million went to public and professional education, $23 million went to patient and community services and $77 million went to research.

This money helped scientists discover a new gene related to ALS, as well as develop new drugs and technologies for people with the condition.

Please challenge your family and friends every August until there’s a cure.

Critics often called the challenge a form of “slacktivism,” but there’s no doubt Senerchia and the ice bucket challenge had a massive impact on the ALS community.

Originally published: November 30, 2017
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