The Mighty Logo

I Know the Pain of Alzheimer’s, but I Also Know the Love

The most helpful emails in health
Browse our free newsletters

They say to write what you know.

I know the pain of losing a parent to Alzheimer’s. I know the pain of grieving the loss of someone you love long before they die. I know the pain of losing more and more of your mom every day.

I know the pain of trying to learn and grow while she is disappearing right before your eyes. I know the pain of trying to build your life while hers is becoming completely undone. I know the pain of trying to prepare yourself for a life without her, even though you’ve already been living without her for a long time.

And now I know the pain of actually, physically losing your mom and somehow finding the strength to go on living without her. These are the things I know and so, these are the things I write. But lately, I’ve been looking for something more. What else do I know? What else can I write about?

A little voice in the back of my head keeps telling me I can’t write about Alzheimer’s forever. That my mom is gone now and one day there will be no words left to write. That I need to create a new life without her, a life after Alzheimer’s. That I need to find something else to write about if I want to keep writing now that this journey has ended.

They say to write what you know. Well, what else do I know? Other than the pain and the grief and the fear of losing my mom to Alzheimer’s?

I know love.

I know the love of caring for a parent with Alzheimer’s. I know the love of showing up day in and day out, even though it hurts to see your loved one this way. I know the love of feeding and dressing your mom, of singing and reading to her, of making her feel safe and loved.

I know the love of doing anything and everything possible just to give your mom a few moments of joy in her day. I know the love of hearing your mom say your name or call you her daughter when you haven’t heard her say it in so long. And I know the love of being so damn grateful for things most people take for granted because I also know how it feels to lose those things.

I know the pain of losing your mom to Alzheimer’s. But I also know the love. The love and the bond between a mother and daughter. A love so deep in your heart and your soul you can feel it in your bones. A bond that nothing, not even Alzheimer’s, can break. No way, no how. Not hell, nor high water.

In searching for something more, I’ve realized I already have it. My story is about so much more than just Alzheimer’s.

My story is about life, love, loss and everything in between.

My story is never-ending.

My story is worth writing.

My story needs to be told.

They say to write what you know, so that’s exactly what I’ll do.

Getty image by Pornpak Khunatorn.

Originally published: October 13, 2020
Want more of The Mighty?
You can find even more stories on our Home page. There, you’ll also find thoughts and questions by our community.
Take Me Home