Alzheimer's Disease

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Alzheimer's Disease
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What is the most rewarding part about being a caregiver?

Being a caregiver can be a challenging but rewarding responsibility. Caregivers play a huge role in the health and wellness of not only their own families and jobs, but also in greater society. We are grateful to have such compassionate and empathetic people in our Mighty community! 💐

What do you find to be the most rewarding part about being a caregiver?

💜 P.S. If your knee-jerk reaction to this prompt was "nothing," here’s a Mighty story about combating compassion fatigue that might be helpful:

#Caregiving #Caregiver #MentalHealth #Depression #Anxiety #CheckInWithMe #Fibromyalgia #Migraine #AlzheimersDisease #Cancer #MultipleSclerosis #Disability #ChronicPain #ChronicIllness #RareDisease

How Parents and Caregivers Can Combat Compassion Fatigue

"These strategies work best when done regularly."
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Still thriving #AlzheimersDisease #Depression #Anxiety #PTSD

Five years in with Alz and I’m doing good.😁 Sometimes I wonder if they have misdiagnosed me and then I get a daily reminder that yea, something isn’t right. I help get the grandkids off to school each morning, play Pickleball, attend a support group and art class for people with memory loss, participate in drum circles, walk on the treadmill daily, and take care of the house and yard. I have my struggles and hubby has taken over my meds and bills and whatever else I need help with. The best thing for me to do is keep social and active.

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Alzheimer's/ Dementia

I spend 8 hours a day with 22 residents who have Alzheimer's.
I hear the residents talk about wanting to go home https://everyday.My job is to be a caregiver. I show them respect
My mom also has Alzheimer's but I am having a very hard time accepting the obvious fact.
She is still my mom . I know she knows me. She is not going to get better.
I need a break.

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Select all that apply
24 days left
I've been formally diagnosed with Alzheimer's
I think I have Alzheimer's but have not been diagnosed
I currently care for someone with Alzheimer's
I cared for someone w/ Alzheimer's who no longer needs care
I am a medical professional who specializes in Alzheimer's
I am a patient advocate or educator for Alzheimer's
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Life with my Mom

#AlzheimersDisease is so freaking unfair.
My mommy does not deserve to live this way.
She is struggling with her self confidence.
Today she fell in her kitchen
She was treated in the emergency room
Left hand is broken
Bruised left eye and cheek
She is now at home
She does not remember falling and she did not know why she was in the hospital.

#AlzheimersDisease sucks

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Walking The Invisible Illness Line

I’ve been bed-bound for the better part of three months now since I had a cardiac episode due to medication induced hyperthyroidism. I’m grateful I no longer need a wheelchair and can manage a 5 minute walk with the dogs and my husband in the evenings. But for the greater part of the day, I’m still stuck in bed.

I’ve watched so many documentaries, movies, and TV shows. And as much as I enjoy reading, cognitively; it’s become a challenge to spend the whole day focussing on small type. I find audio books to be more akin to auditory noise rather than being enjoyable, so that rules these out. Which makes the discovery of downloadable learning TV apps something of a revelation.

I recently downloaded Coursera and I’ve been learning about learning and memory, which is both interesting and useful—in that I have the gene for early onset Alzheimer’s disease. So keeping my brain challenged in doses I can manage, will hopefully help to stimulate my brain to keep creating healthy new neural connections. Next I’ll probably do some courses on mythology but it’s a comfort to know I have a way of keeping myself occupied in a way that is good for my brain health, and my mental health. Because all that free time can make my thoughts spiral at times—which I think is natural, and to be expected.

We are creatures of habit, yes. But we all also want to feel like we are leading meaningful lives, and I think this is the cruelest part of being chronically ill.

Whatever you enjoyed before gets taken away. Then come the doubters… the doctors, the comedians, the social commentators and painfully, family members, or so called friends—all eager to stick their claws into you when you are at your most vulnerable. And there’s only so many times you can hear the empty words “get better soon”, or “have you tried yoga or meditation” before it starts to erode away at your soul. The truth is I think there is no way to successfully walk the invisible line of trying to make the best of your lot, and convince people that you are also chronically ill.

The line itself is so faint, as to be invisible to most.

Society wants you “whole” or in hospital… there isn’t much room, or understanding, for anything in between. We have to learn to accommodate the grief that comes with being socially maligned, which is something I still struggle with almost every day, alongside having to advocate for myself to get assistance to manage my health. These burdens, social, mental, monetary, access to healthcare, loneliness, and more—are not challenges that any person should have to face alone.

But if I have learned anything in life, it is that there is always power in knowledge. So while I continue to try and navigate the invisible illness line, I’ll be learning about myths and poetry, and continue to take comfort in other people’s autobiographical tales of misery. Because being chronically ill is a tragedy, and as the saying goes misery loves company.

#MentalHealth #ChronicIllness #MyCondition #ChronicFatigue #InvisibleIllness #Thoughts #AlzheimersDisease #Grief #Loneliness #selfcare #Disability #InvisibleDisability #MyalgicEncephalomyelitis

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THANK YOU SO MUCH... WE HAVE REACHED 1,500 members … and counting! If you haven’t joined us yet we welcome you to join our community!

Thank you for joining us as we support each other with our multiple health challenges! We appreciate you being a part of our community. This group was started with the intention of being a place where members can empathize with each other, find support and offer support to others. We love watching as this has been happening, but we think we can get even stronger! Please consider commenting or responding to other’s posts and responses even more. Even if it’s just a ❤️ or a 👍... or respond with a comment. This really helps us to feel supported and encourages people to post more.

Thank you for joining us on our journey so far and we look forward to getting to know you all better in the future.

Your Multiple Health Challenges Leaders! 💜❤️👍

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