Alzheimer's Disease

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Alzheimer's Disease
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Interviews with Scientists!

Hi Everyone! I'm new here. The patient committee I manage suggested I post this interview series here for interest and educational purposes. I'd love your feedback! Our goal is to reach a wider public/patient audience with this project! Happy watching and I hope you learn something learn! www.youtube.com/playlist #scicomm #ClinicalTrials #Research #StemCells #CardiovascularDisease #AlzheimersDisease #ParkinsonsDisease #Diabetes

Stem Cells from the Sofa

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I just ended my monthly support group called Dementia Dialogues. I had no idea that there are Memory Cafes for places to get out and be in a non-judgmental, safe environment with others going through the same difficulties. I looked it up and they are everywhere!

#Dementia #AlzheimersDisease #LewyBodyDementia

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My apologies

#I'm sorry that I have been falling behind in my postings. July has been a tough month for me. Most days I have been sleeping and not really leaving my bed.

I have a series of doctor visits coming up that will determine if I have Lewy Body Dementia. This is a spectrum involving the mix of Parkinson's and Alzheimer's. At the same time as this, I am also in the process of tests to see if I have Intracranial Hypertension. That is where too much spinal fluid is building up for whatever reason and filling areas in my skull damaging my brain.

I am not in denial. In fact, I feel that these two conditions have been the closest to the truth in my three year journey to finding the truth about my health.

I'm scared. I see my father, who has Alzheimer's, decline slowly and he is so angry. I don't want to be angry and mean.

I also have accepted that I need mobility aids. I cleaned up my grandfather's walker and crutches. I saw a wooden walking stick; very fancy. I felt like Frodo Baggins. I can get into using that.

Another thing I am scared about is forgetting people I love. I don't think that will happen anytime soon, but it could be my future and I don't want that.

Thanks for reading my ramble.

#Dementia #Depression #ParkinsonsDisease #AlzheimersDisease #MentalHealth #Grief

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A Million Different Meanings

I grieved the loss of many health issues and constraints, my two kids’ neurodivergence, and mom’s Alzheimer’s. However, I found my happy again by reframing my thoughts and celebrating who and what is. I dream differently now. Don’t put undue guilt, shame or expectations on your body. It’s a journey that only the strong and courageous could make it through!
#MentalHealth #ChronicFatigue #AutoimmuneThyroidDisease #AlzheimersDisease #Autism #Anxiety #Arthritis #ChronicObstructivePulmonaryDisease #Schizophrenia

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