These Photos Are a Reminder That Our Loved Ones With Alzheimer's Are Still People
“Nana said, ‘Bill’ today!” my mom exclaimed before she even had both feet inside the house.
She’d just gotten back from spending the day at Mary Manning Walsh Home, the nursing home on Manhattan’s Upper East Side, where my grandma lived for the last few years of her life.
It shouldn’t have been a big deal that an 80-something-year-old woman said her late husband’s name, but for us it was.. My nana had not uttered a lucid sentence in about two years. Since her dementia diagnosis and two mini strokes, she barely reacted to those around her, including her three children. She gurgled off syllables that made no sense and needed to be hand fed. She wasn’t Nana, really.
Except that she was.
Her mind was slipping away, but with that one word — “Bill!” — we remembered she was in there. She was still Nana, a mother of three, a woman in love with the husband who stood by her side until his dying day (I’ve written about their relationship in more detail here, if you’re interested).
With Julianne Moore’s Oscar win and important acceptance speech, the film “Still Alice,” which follows a woman living with early onset Alzheimer’s disease, rocketed into the spotlight. I’m thrilled about this.
I’m also thrilled that the film’s title inspired the Alzheimer’s Association’s most recent Twitter campaign, where followers send in photos of their loved ones living with dementia and Alzheimer’s disease. With each picture, users include a hashtag like #StillMom or #StillPopPop. I love it because even though my nana passed away in 2010, it’s comforting to think she didn’t die as someone else. Her mind’s deterioration was sad and painful and at times even cringeworthy, but she was still Nana.
So to me, and I’m sure to many others, the hashtag is more than a social media trend or this week’s buzzword. It’s a tribute to the ones who won’t be around to see a cure for Alzheimer’s.
It’s a reminder that when they died, they were still nanas and moms and brothers-in-law and best friends and husbands. They were still people.
Take a look at some of the submitted photos below and follow the campaign on the Alzheimer’s Association’s Twitter page here.
Affected by Parkinson’s dementia at end of life. He’s why I do the work I do. #MyBrain #StillDad #StillDave #ENDALZ pic.twitter.com/eT4VFro9NW
— Michelle Johnston (@mjohnstonalz) February 24, 2015
Fighting in my dad’s memory to #endalz. Love you and miss you Dad. Your Grandkids miss you too! #MyBrain #StillMax pic.twitter.com/D3rkXPHhLM
— Lisa Brones Huber (@BronesHuber) February 23, 2015
she taught me how to pray & now i’m praying for a cure ???????? #StillRaquel #StillGrandma #ENDALZ @alzassociation pic.twitter.com/KVgZruR19B
— Raquel (@raqattackkk) February 23, 2015
#ENDALZ #MyBrain Honoring her memory #StillMom and praying for a cure for Alzheimer’s and early-onset. pic.twitter.com/2j4vGP9lLS
— Kelly Yeager (@YeagerBoysMama) February 23, 2015
Still our family, still our life, #StillRobert #EndAlz #StillAlice #MyBrain #Oscars pic.twitter.com/gkB1j33uYK
— Villa México Café (@VillaMexicoCafe) February 23, 2015
#stillalice #MyDad #endalz @IU_Health One of the last things Dad held on to was his love ‘for the glory of Old IU’ pic.twitter.com/z6QsHHz0Sg
— Sabrina Kapp (@sabrinakapp) February 22, 2015
Behind those hollow eyes is the man we all love. The man who loved to dance and make us smile. #Papa #myhero #ENDALZ pic.twitter.com/ytHg0jJW9e
— Renae (@SocialNae) February 22, 2015
1/8/15: we lost my Pa to cancer & Alzheimer’s. He is missed everyday! #StillPa #MyBrain #EndALZ @alzassociation pic.twitter.com/clkUKcdoV4
— Rachel Helms (@Rachel_Helms11) February 22, 2015
.@alzassociation Always find time for moments! #StillAlice pic.twitter.com/LH0cIfraLg
— Dukeness (@dukeness) February 22, 2015
@alzassociation 6 mnths ago today I lost my dad to Alz.So happy to keep his memories #StillEddie #StillmyDad #MyBrain pic.twitter.com/3sb6UrRhLL
— taylor whalen (@taylorwhailer) February 22, 2015
Still adores his wife of 70 years. Still adorable. #StillMyUncle #MyBrain #ENDALZ pic.twitter.com/CKG6iOVrfS
— Melissa Hedal (@melhedal) February 21, 2015
@alzassociation #stilldaddy #alzheimers #MyBrain 1942-2015 love you daddy everyday pic.twitter.com/zEVhWvIZW2
— Shelly Kelly (@skelly0525) February 21, 2015
@alzassociation #MyBrain #StillArline #StillMemere #EndAlzheimers pic.twitter.com/fpcq9W03sO
— Sam Meletis (@MeletisSam) February 21, 2015
#MyBrain #StillMyDad #BestGrampaEver #WeWishYouCouldRememberUs #ForeverLoveYou pic.twitter.com/w85Dit7V8v
— Chris (CJ)DePasquale (@chijags) February 21, 2015
@alzassociation still miss you Mum and always will… #MyBrain #StillJoan #ENDALZ #dementiachallenger pic.twitter.com/z7nC0I0pYd
— Susie Q (@smlomax) February 22, 2015
@alzassociation made a short film about my lovely grandad. Love always xx #ENDALZ #mybrain ❤️ https://t.co/NvPyEcS5MN pic.twitter.com/FwHW1ewah5
— May Simpson (@disabledmabel) February 21, 2015
#StillDad #StillNeil @alzassociation #Stillfighting Take just two weeks ago. pic.twitter.com/5fJBVJXB11
— Marci Smith Linson (@mclinson) February 21, 2015
@alzassociation early onset and only 8 months in, but he’ll forever be my rock, my best friend, my dad. pic.twitter.com/mWUOURrUJL
— hallaureen ???????? (@failyou_again) February 21, 2015
@alzassociation My Gram! She was always young at heart. #ENDALZ pic.twitter.com/eGXgQgHEY5
— Leia (@ASharpieGirl) February 21, 2015
My lovely, beautiful, silly Grandma. Who we miss so much! #MyBrain #EndAlz #StillVal pic.twitter.com/Yy6RLOSuLf
— Niki (@Niki_Walter) February 20, 2015
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