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It's Time to Shine a Light on Chronic Pain

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When you are constantly in pain to the point you feel like you would rather cut off every limb because it would probably be less painful, the last thing you want to hear is “it’s in your head,” “move on with your life,” or “you don’t look sick.” It can be detrimental to your mental health and well-being to constantly feel you aren’t being believed.

I have had several instances where my doctor told me that I am probably not a 10 on the pain scale because I would be on the floor dying. I couldn’t believe what I was hearing. How could someone I trusted treat me like I was just trying to get attention? I have continued to overthink everything from the point on. I knew what I was feeling was real and people around me did too, but I couldn’t shake my self-doubt.

It’s not me. It’s him. 

Deep in my heart I know I would never lie about my pain, but when you don’t have the right doctors, or when people don’t believe you, it can break you.

It’s not me. It’s them.

Like I have said many times, we need to advocate for ourselves.

I have seen and heard so many stories like mine and it is heartbreaking. There are people suffering who feel alone because people around them don’t understand what they can see. We are just like the rest of the world. Just because we don’t always have physical symptoms or have marks on our MRIs doesn’t mean we aren’t suffering. We need people to recognize that.

We need you.

With chronic pain and chronic illnesses, everyone is different. No matter how many people have central pain syndrome, fibromyalgia or any other illness, there never are two symptoms or warriors alike.

We are warriors. 

We must go to battle everyday for ourselves, whether it be with our own bodies, doctors, people around us who shove us off to the side, and even time.

Time can be a huge battle because we never know when we are down and out for the count. Nothing about chronic pain is predictable. One minute you may be at a two, the next you can shoot up to an eight.

The time is now.

We all need to work together to create awareness for not only central pain syndrome, but chronic pain. Let’s bring down the number of people who kill themselves because they feel alone and like they aren’t worthy. We need to come together and fight because the sad fact is you can wake up one morning completely “normal,” and within a second your life can change.

I will leave you with this. Think about if you had to deal with your body burning on the inside, your brain not understanding what pain is anymore, not being your typical self, having to spend days on end at home, or trying to do what you love and physically not being able to do it.  I bet you would do whatever you could to try and fight, including advocating for yourself. Help the millions suffering right now raise awareness and maybe one day we will be able to live more.

Getty image by Nadia Bormotova.

Originally published: June 9, 2019
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