Central Pain Syndrome

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Central Pain Syndrome
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    I’m new here!

    Hi, my name is DeccyV. I'm here because I wish to talk to people that I can relate to in terms of my health condition.

    #MightyTogether #CentralPainSyndrome

    5 comments
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    I’m new here!

    Hi, my name is Lauren. I'm here because
    I want to add to the number of people who can relate to the challenges I face and help me become the best version of myself. I’m excited to meet people with the same challenges as me.
    #MightyTogether #Anxiety #ADHD #MyofascialPainSyndrome #CentralPainSyndrome

    2 comments
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    I'm new here!

    Hi, my name is Lulabelle22. I'm here because

    #MightyTogether #CentralPainSyndrome

    2 comments
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    I'm new here!

    Hi, my name is Nancyi. I'm here because I suffer with back pain having had 3 surgeries. I also have Reflux that has developed from stress. I also have an autoimmune disease affecting the skin that causes terrible itching and in some people blisters.
    #MightyTogether #CentralPainSyndrome #GastroesophagealRefluxDisease

    5 comments
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    I’m new here!

    Hi, my name is Brunette_Rhyme. I've been diagnosed with and am a long term sufferer, I have other conditions but they are not on this radar however that does not surprise me. I feel out of 32 neurological and a mess of a muscularskelatal, my body is heading for another change. How long before we know what’s going to happen is anyones guess. My biggest obstacle right now is I seem to be my carer’s carer. I have a new set of carer’s coming on board. My new NDIS package has come through and finally I had and awesome LAC who knew what she was talking about. We have fought so hard and finally I received a package where I now might received the care I need instead of laying on the floor in a pool of blood in the morning whether I have an Apple Watch on or not. It is all dependant on the impact of the fall and mine are usually low by the time I hit hard. I have been on dexemethasone for nearly 3 months this time and it’s taking it’s toll and my doc does not get back from holidays for another month. I have to hang on as 2 hospitals have nearly killed me and I refuse to go down that road. I have an induction on Monday and really need these carers up to speed. I have one carer who is about to take leave and is on holidays to Italy. I hope she has and amazing time and sadly another one I have just lost as she had a fight with another carer to whom where previously friends. She put me in a very awkward position of choosing. I refused to and split them apart. It was not good enough so she resigned. I am very sad for this and I see her hurting right now but as the say with Pride come a fall. She knows I am very fair and kind however she needs to ask me. I guess I am reaching out for some moral support as I am truly exhausted and know I need to hang in there. I hope every is doing the best they can? If you are having reasonably good day, share and extra smile for the rest of us and we will do the same in return. J

    #MightyTogether #Anxiety #Migraine #Fibromyalgia #ADHD #PTSD #RheumatoidArthritis #MultipleSclerosis #ChronicIllness #CentralPainSyndrome #MyofascialPainSyndrome #ChronicInflammatoryResponseSyndrome #UrticarialVasculitis #CentralSleepApnea #CentralSensitizationSyndrome #VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems #MultipleSystemAtrophyWithOrthostaticHypotension #HipDysplasia #DegenerativeDiscDisease #DentatorubralAtrophy #MyotonicMuscularDystrophy

    3 comments
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    I’m new here!

    Hi, my name is Beowawe. I'm here because I have progressive autoummune motor, sensory, and small fiber neuropathy and disautonomia

    #MightyTogether #CentralPainSyndrome

    4 comments
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    I’m new here!

    Hi, my name is stillprithvi. I'm here because we matter.

    #MightyTogether #obsessive-CompulsivePersonalityDisorder #Anxiety #Depression #BipolarDisorder #Grief #ChronicIllness #CentralPainSyndrome #painfulbladdersyndrome

    11 comments
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    I’m new here!

    Hi, my name is Alexis_G. I'm looking for some people to talk to that have some of the same things I would like to have someone to talk to about this all

    #MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #AutismSpectrumDisorder #PTSD #Grief #CentralPainSyndrome #PrimaryImmunodeficiency

    4 comments