Centralapnea

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    CPAP journey #CPAPMachine #Centralapnea ##obstructiveapnea

    I had no idea that a CPAP machine and all of its stuff would be a part of our journey. It’s been just over three weeks. It’s not so fun. Lol. Our daughter is a trooper.

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    Our rare and mighty little warrior #LaryngealCleft #Tracheomalacia #Centralapnea

    My thoughts are so many. Some days it’s hard to articulate. Our girls are rare and mighty and little. And oh, they look really pretty and healthy. But guess what? They are not. As their mama I stay up and check on them and make sure that they are breathing. Are they cold and shivering or is that a seizure?#Lookscanbedeceiving #rareisrare #neverjudgea
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