Melissa Hoffman here 🖐
I hope you all are traveling ok 😘
Myself diagnosed with Chiari by accident a few years ago .
Then knowing what I was looking for ,
2 of my 4 kids also were recently diagonsed with #Chiari so far .
We all suffer different quite different symptoms . And it's progressing in all of us more & more .Trying to get any of the stubborn and well uniformed Drs here, is proving quite stressful also .
I've been tryin to get answers for some 40 years endless treatments & operations , travelling to see various health professionals across the Australia. 😢🧠💜..
So I started an awareness drive  & now I'm  Founder/Director-volunteer @ Purple Hair Day for Chiari Global 🧠💜
A public chiari awareness Co , #PURPLEHAIRPLEASECARE .
fully registered & approved nationwide , not for profit foundation & pages to raise public awareness & funds GLOBALLY . AWESOME that research has just started in Sydney with Prof M.Stoodley . Also we will get hardship & kids wish & camps for #Chiari kids & better treatments of patients/families .
Our partnership with @LeonieClarke #CHIARIWA & #MssBrain #graninavan
& Morgan Kennedy - #CHIARIMALFORMATIONTYPE1AUSTRALIA
And with some 600 + memes made
Our plan is to get #PHD4CG -
Purple Hair Day 4 Chiari Global
in every single school from prep to college facility in Sept by 2020 🤞💜🧠 with our mascots
#bobbert & #Missbrain #CHIARIWA to help us raise fund & awareness 4 research for better treatments &
or a cure 4 #ChiariMalformation
#Chiari (Kee - AR - Ree)
#adelaide #Australia
Cheers Mel & kids & volunteers xx 👍🇦🇺
PLEASE feel free to share /copy & paste this post ..
Cheers Mel & kids , Leonie & Morgan Volunteers
@ #PHD4CG & #CHIARIWA #CHIARIMALFORMATIONTYPE1AUSTRALIA