CTNNB1 Syndrome

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The author's son at 5 years old. He has curly blonde hair and is wearing a white T-shirt while looking to the side.

The author's son at 5 years old. He has curly blonde hair and is wearing a white T-shirt while looking to the side.

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3y

Why I Can't Go 'Back to the Future' as the Parent of a Child With a Rare Disease

Michael J. Fox is one of my heroes because he is courageous, because he is a leader, and because he believes in optimism in the face of despair. He’s one of my heroes because he lifts up those who aspire to those traits. But you know one of the other things I love about Michael? [...]