Double-Inlet Left-Ventricle Heart Defect

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Double-Inlet Left-Ventricle Heart Defect
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Mighty LeaderSuper Contributor
Amelia Blackwater
 • 
@amelia-blackwater
CongenitalHeartDefectDisease 3y
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Wow! These are amazing numbers!

Survival to adulthood is better because of improved fetal diagnoses and advances in medical and surgical techniques that have increased survival rate of those with CHDs!

#CongenitalHeartDefectDisease #adultchdwarriors #TetralogyOfFallot #DoubleinletLeftventricleHeartDefect #TranspositionOfTheGreatArteries #CongenitallyCorrectedTranspositionOfTheGreatArteries
#PosturalOrthostaticTachycardiaSyndrome #Disability #RareDisease

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Baby Emiliano
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@fernandosalas
DoubleinletLeftventricleHeartDefect 5y Sent from app
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My baby is opened for the second time !!! For heart surgesur

#DoubleinletLeftventricleHeartDefect

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Baby Emiliano
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@fernandosalas
DoubleinletLeftventricleHeartDefect 5y Sent from app
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Paul Eiche
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Caudal Regression Syndrome
9y

To the Dad Overwhelmed by His Newborn's Bleak Prognosis

My daughter, Namine has double-inlet left-ventricle heart defect (DILV) and caudal regression syndrome (CRS). As far as physical limitations go, the latter is certainly the more apparent disability. But as serious as Namine’s conditions are, she’s doing exceedingly well. We were in the grocery store yesterday, and Namine was being her normal hyper self – singing and talking and kicking her [...]
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