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Join us on Rare Disease Day for a livestream discussing the social impact of rare disease!
In honor of Rare Disease Day, Mike Porath, Founder and CEO of The Mighty, Carli, a 26-year old woman living with fibrodysplasia ossificans progressiva (FOP), and Jeanine, a woman in her 50s living with primary biliary cholangitis (PBC), will dive into a live discussion speaking to their personal experiences related to the social and emotional impacts of rare disease on their lives.
Be sure to tune into this discussion on navigating the ins and outs of life, relationships, and rare disease from three experienced advocates by signing up here:
Sponsored by Ipsen.
#RareDisease #FibrodysplasiaOssificansProgressiva #PrimaryBiliaryCholangitis #RareDiseaseDay
Getting to the Heart of the Social Impact of Rare Disease | The Mighty
Virtual Event - Join Mighty founder Mike Porath as he talks with two patient advocates, Carli and Jeanine, who live with fibrodysplasia ossificans progressiva (FOP) and primary biliary cholangitis (PBC) to discuss navigating social impact and relationships while living with a rare disease.
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