If I could give myself advice this #RareDiseaseDay
Today I was asked “What advice I’d give myself .” In an attempt to look outward at the catastrophe which is my current medical situation. ( and honestly many with rare diseases have probably faced a similar cruel reality )
But my thought was ..
How do you save someone when the shark has already attacked?
When the blood has oozed
When the pieces of you are already gone .
When the damage is already irreversibly done .
After moments which felt like hours of pondering
I think my advice would be
There is no shame in healing
In letting yourself lean on others
In putting in. ALLL your effort , to seemingly just being able to maintain pace
I think those of us, who have experienced what it’s like to in some way to feel try “broken “
Try to hide the pain we go through daily so we don’t spread that pain to others
But we forget to realize the beauty in the fact that after it all .
We are still trying .
Broken , bloody , bruised, scared , maimed… We are still trying.
We haven’t let the darkness win
Today is #RareDiseaseDay .
Something I’ve posted about all month .
Something you have definitely seen my struggles with these past couple of weeks .
Rare disease has grabbed my life and thrown it upside down .
It’s changed every piece of me
Mentally , physically , spiritually, emotionally .
I pray …. and deep down I know all those changes are for the better .
So here is to the fighters , the survivors, the ones searching for a diagnosis, the ones we have lost , the ones searching for their place in a world where you will “ never get better “
Keep going . Your doing so much better and you are so much stronger than you think you are .
I promise you , that in the most unlikely places . You will find hope .
But you have to keep moving forward ❤️ no matter how slow the pace
#smileon🐷 #spoonie #RareDisease #showusyourstripes #RareDiseaseDay #nord #careaboutrare #cvidawareness #gastroparesis #itp #uctd #dfsp #keepgoing #faith #trauma #mentalhealthmatters #chronicpain