Food Protein-Induced Enterocolitis Syndrome (FPIES)

This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic reactions commonly seen in the media are IgE reactions — those that [...]

Dear Doctor, I’m so thankful for the educated care you have provided us in caring for our daughter with food protein-induced enterocolitis syndrome (FPIES). She hasn’t followed the traditionally charted course of FPIES. She has had unusual expressions of it. Your active research and reading has provided me with excellent insight despite the times when you don’t know [...]

To the parent of a child with FPIES (food protein-induced enterocolitis syndrome), I think about you, and pray for you daily. I see you. I feel your frustrations. My heart truly aches for you. Today your child may accidentally eat something they can’t have. They may vomit so much you have to rush to the hospital. [...]

This post was inspired by a Food Protein-Induced Enterocolitis Syndrome (FPIES) article appearing on The Mighty, “What I’ve learned as a mother of a child with FPIES.” At the end of the article, the author mentions her ability to know the cross-contamination of common grocery store items. When we shared this article with our community, it [...]

This week is Feeding Tube Awareness Week and we wanted to share with you how much having a feeding tube has positively impacted our son’s life. The decision for our son to have a feeding tube has been one of the hardest decisions we had to make for any of our children. I want you [...]

Our FPIES diagnosis was a “curve bat” that finally settled me down. Just kidding — it opened up an entire new world of medical terms, symptom tracking and enough “poop pictures” for medical staff that would make your head spin. I wonder if you are thinking, “Lady, the phrase is ‘curve ball.’” No, not in this [...]

In the rare disease communities, other parents can be a wealth of information and we witness parents paying it forward every day.  The FPIES Foundation was founded with these same pay-it-forward goals in mind, sparked by the desire to help other families find their way. Food protein induced enterocolitis syndrome (FPIES) is a delayed type of [...]

Food-protein induced enterocolitis syndrome (FPIES) is a type of food allergy. FPIES is a delayed food allergy of the gastrointestinal system, which means a reaction may not happen until hours after a trigger food exposure. FPIES is most often diagnosed in infants and young children although school age children and some adults are living with [...]

Since birth, our daughter has had challenges eating and gaining weight. At 3 months she was moved to an expensive formula that was amino acid based (no protein to digest) because she couldn’t digest protein at that time. Thankfully we had discounts for the formula and loving friends and doctors who gave us free samples to [...]

Food protein-induced enterocolitis syndrome (FPIES) is a rare type of food allergy affecting the gastrointestinal (GI) tract. “The symptoms often include profound vomiting, diarrhea, and dehydration, which can lead to severe lethargy, change in body temperature and blood pressure,” according to The FPIES Foundation. It can be difficult to obtain a diagnosis for FPIES because unlike [...]