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Secrets of Being a Parent of a Child With Disabilities

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Parents of children with disabilities share their secrets.


Secrets of Being a Parent of a Child With Disabilities

Do you have advice for new parents? Share it with our supportive community:

“You know your kid best. Don’t be concerned with what others say. Trust your gut.”

“It’s lonely. But when you meet someone who gets it, it’s transforming.”

“You are not weak when you get angry and upset.”

“There is consistency in routines.”

“You can say “no” to doctors.”

“You have to also take care of yourself.”

“You don’t ask, you just do.”“Pencil it in on the calendar, never pen. Be flexible.”

“It won’t help anyone to compare your child to others.”

“You will become an army for your child.”

“Never be ashamed to seek professional help.”

“It’s OK to let your child set the pace.”

“You and your child have nothing to be ashamed of.”

“You’ll need a sense of humor… fast!”

“It’s about progress, not perfection.”

“I cry. All the time. Joy, frustration, exhaustion, successes, good days, bad days – I cry for all of them.”

“Parents who have walked the same path are the people who will march alongside you and hold you up in this journey.”

“You won’t think a milestone is just a milestone. You’ll treasure things most wouldn’t think twice about.”

“You don’t always have to be the cheerleader. It’s OK to say, ‘This sucks sometimes and it’s hard!’”

“You’ll become an advocate, an educator, a specialist and a therapist.”

Originally published: August 5, 2019
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