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Chronic pain parenting assisted devices

What are the best devices, hacks and tricks you use to help with your babies and infant care when you yourself are disabled/suffer from chronic pain, fatigue and mobility issues? Just trying to make it a bit easier and looking for the best ways others have found to do that. #Fibromyalgia #BackPain #COPD #ChronicPain #Parenting #GeneralParenting

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Parenting with Chronic Illness

Being a parent with chronic illness can bring strong, seemingly conflicting emotions. My girls bring humor, art, compassion, creativity and fun to the world. I know they need me, even broken me, so they help keep me going, help keep me fighting. And I know I’m lucky to have the color, life and joy they bring to my life. ~~ Simultaneously, I struggle so much with the guilt of not being able to be and provide more for them. I struggle with thinking that they got “the short end of the stick” and that it has negatively affected their lives. Being a parent can be exhausting and hard. It’s even more challenging while being sick and broken. I’m doing the best I can but, in the back of my mind, I’m always afraid it just won’t be enough.

#GeneralParenting #ChronicIllness

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Overburdened Caregiver

I read in a scientific study that being a parent to a disabled child is as stressful as being a war vet who saw regular combat during their tour. I believe it. In fact, it helps me get thru my day and take it a little easier on myself. But guys, I am burnt out. I’m like the menorah on miracle crack lmao Every couple of hours I’m convinced I have nothing left to give, but then I sit next to my daughter. Eventually we laugh at something, and for a moment everything’s ok. Until I get up from the couch she only leaves once or twice a day (sleeps there, too), and I recall my mountain of tasks, and I look around and see my mom and brother going through their struggles unwilling or unable to help. I swear it feels like a tiny piece of my soul dies every time. I get it, my bro doesn’t like kids, my mom is disabled… that should be enough. But then I get criticized or gaslighted on top of it. The other day my mom was trying to offer verbal support and casually said, “I don’t know how you do it. If I was in your situation, I would’ve killed myself. But then again, I also wouldn’t have gotten pregnant by such a loser.” Pretty sure I froze up so hard I stopped breathing. My daughter is well within ear shot, looking at me apologetically. My mom notices my startled reaction and says, “what? It’s the truth,” shrugs her shoulders, then walks off. She was right about one thing. I have absolutely no clue how I’ve managed to stay sane in this house. The good news (I think) is that my psychiatrist has put moving out as equally important to my mental health as taking my meds regularly is. She said it’s “half of your plan.” But I can barely shower. How am I supposed to move not only myself, but my daughter, as well? God answered and Medicaid deemed me “an overburdened caregiver,” and 32 hours of assistance a week! If only the provider could find an attendant… in the meantime, I’m living moment to moment. Chore to chore. Clinging for my life from one silver lining to the next. Finding comfort in sugar. I’m losing my grip. Suicide isn’t an option. I’m the only human being my daughter has. And as long as we can still laugh, I will persevere. I just wish it didn’t hurt so damn much.
#MajorDepressiveDisorder #ComplexPosttraumaticStressDisorder #SuicidalIdeation #MentalHealth #Addiction #OccipitalNeuralgia #GeneralParenting #AutismSpectrumDisorder #neglect #Abuse

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This is my first affirmation, and it gave me goosebumps lol I’ve stayed up all night procrastinating decorating for my daughters bday today. One of those activities being this app! lol but I’m reminded it doesn’t have to be perfect. Just start somewhere… that she can’t see bc now she’s awake 😅
#Anxiety #GeneralParenting

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Happy Thanksgiving! Check out BPD parents of Littles group.

Hope everyone is having a wonderful Thanksgiving 🦃 I'm new to the Mighty but happy to be here! I created a group for parents of little children living with Borderline Personality Disorder. Come join if you are wanting a community of support while navigating the challenges of parenting and living with BPD. Let's support each other! My group is called BPD parents of Littles.
#BorderlinePersonalityDisorder #Parenting #Trauma #MentalHealth #GeneralParenting #Anxiety #Depression

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A smile can hide many things .... #MentalHealth #mentalhealthmatters #Anxiety #ChronicDepression #Depression #Selfcare #Parenting

Just because someone is smiling doesn't mean they're FINE .Just because someone you see that is unwell or has been dealing with any physical or mental health issues is smiling doesn't meant they're BETTER .It doesn't mean they're OK now or that they're not in pain .Usually alot of the time it's because they are used to dealing with their struggles and pain and are just trying to put on a smile and get on with it .You never know how much someone is really struggling so don't judge them .Don't just assume or make comments to them about their health being better or because they don't look sick if they're smiling or have managed to get dressed or go out .You've no idea how much it's taken them to even do that ....
And you never know just how much someone need syour kindness today ♥️

BE KIND ♡
YOU MATTER ♡
LOVE YOURSELF ♡

#MentalHealth #MentalHealthAwareness #mentalhealthmatters #Anxiety #Depression #Selfcare #Melanoma #SkinCancer #Insomnia #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #Bekind #loveyourself #GeneralParenting #Parenting #MomGuilt #ChronicIllness #ChronicPain #BladderPain #BladderProblems #bladder #Endometriosis #AloneTogether

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Reality .... #MentalHealth #mentalhealthmatters #ChronicPain #Anxiety #Depression #Selfcare #CheckInWithMe

😂😂😂 this is definitely the reality when suffering with chronic pain , anxiety ,depression ,fatigue ,physical pain or just mentally struggling.
When you feel like you need a rest after just taking a shower because your so drained .....

It's the little things that seem so simple to others that can really take so much working upto actually doing & then struggling so much after doing it .

#MentalHealth #ChronicPain #ChronicIllness #bladder #BladderProblems #Endometriosis #Catheter #Melanoma #Anxiety #mentalhealthmatters #Bekindtoyourself #loveyourself #Positivity #Bekind #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #Depression #Parenting #GeneralParenting #Insomnia #ItsOkNotToBeOk #SkinCancer #AloneTogether #struggling #youmatter #Selfcare

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Upcoming summer break is causing me so much anxiety ......... #MentalHealth #mentalhealthmatters #Anxiety #Parenting #GeneralParenting

So tomorrow is the little ones last day at school before the 7/8 weeks summer break.
I had been hoping g that I'd have had some sort of surgery or treatment by now before this instead doff just being left like this for nearly 4 months now.I am feeling so anxious about trying to be mummy everyday over the break ,making it fun for them ,keeping them occupied and busy and making memories while mostly being housebound.If it's nice we can spend time in the garden and do things ther ebut even that I know I will struggle with ,so on the rubbish weather days when we're estuck at home while I'm in constant pain I am stressing about how I can make it fun for them ,be mummy , not ruin their break because I am in agony and supposed to be on bed rest !! I feel frustrated that I have been left like this and still waiting on appointments regarding teats and if can get the surgery etc. I go in next Wednesday for biopsies ,two for cysts they found on my thyroids so I'll have stitches and stuff too and probably not be feeling the greatest. So my anxiety is just so bad ,feeling so guilty that compare dto last year I can't do the things I always did with them plan trips,days away, swimming,fun activities etc as even doing simple things at home are such a struggle pain wise and then totally drain me ......
Really trying to think of lots of little ideas to do with them to make memories and make it as fun as I can for them but I am really stressing over it .
While also trying to make sure i have little moments of self care for myself to help with my anxiety & to try take those moments to do things for me to just recharge myself so i dont end up completely burntout.Having chronic pain ontop of other health issues while trying to be the old me and best mummy I can now is definitely challenging 😭😭😭

#MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #Melanoma #SkinCancer #Insomnia #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #Bekind #loveyourself #GeneralParenting #Parenting #MomGuilt #Positivity

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Reality ........ #MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #ChronicPain #ChronicIllness

I have so many health issues and symptoms going on at the moment I don't know whether I'm coming or going !!! I have had Meds increased and also on new medication and trying to take some vitamins on top too to try help with some symptoms and issues .

I feel like I am a million different versions of myself daily as if it's not one symptom playing up it's another and at this point I feel like I've lost all control & awareness of it all some days .......

#MentalHealth #mentalhealthmatters #Anxiety #Depression #Selfcare #Melanoma #SkinCancer #Insomnia #longcovid #COVID19 #PTSD #Upallnight #CheckInWithMe #Positivity #Bekind #catheterlife #Catheter #loveyourself #Parenting #GeneralParenting

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Absolutely drained ...... #MentalHealth #CheckInWithMe #Anxiety #Depression #Selfcare #ChronicPain

So 12 weeks of having long term catheter, 11 weeks of having an infection which is now kidney infection, being in pain every single day and even walking is so sore and ends up making more issues with the Catheter either causing it to block,retain ,bleeding ,and just absolutely so painful!! Being told to just take morphene every 2 hours daily on top of 8 other medications, while being in pain everyday ,struggling even with walking all daily tasks ,its crazy to have to need this medication to just try and get through a day .I am so mentally & physically drained with it all my urgent app to discuss about catheter isn't until mid June so have to deal with this for like another 3/4 weeks 😭🙈

I feel like all I do is complain and I'm totally loosing all positivity and strength I had !!

#ChronicPain #ChronicIllness #Endometriosis #Insomnia #SkinCancer #ChronicDepression #MentalHealth #CheckInWithMe #Anxiety #Depression #Selfcare #PTSD #Positivity #Bekind #loveyourself #GeneralParenting #Parenting

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