I lost my younger brother to #hplhs and I miss him everyday. we were separated at a young age due to abusive parents. he died when he was 11 and no one told me. I found out from a timed hopped post on Facebook. when I confronted the “family” member that was caring for him they shamed me for “missing the chance” to get to know him. it makes me so sad. I know it wasn’t my fault I missed my chance. I was getting abused and running away from our parents. I didn’t know he was going to die... anyway, sorry if I said too much. I know people on this thread are actually still fighting the condition. I wish the best of luck to all of you and your loved ones living with HPLHS.
#miracles #goodluck