I’m look for anyone that has been diagnosed with idiopathic pulmonary hemosiderosis, and if cause has been identified.
I was diagnosed in 2018 at age 46 with idiopathic pulmonary hemosiderosis via lung biopsy. I’ve been accepted into the undiagnosed network to try to find cause but everything has been on hold due to covid . I am being treated for mixed connective tissue disease currently as well as oxygen dependent. #IdiopathicPulmonaryHemosiderosis #InterstitialLungDisease #RareDiseases #Rare #MedicalZebra