Kabuki Syndrome

As special needs parents, our first instinct when we receive the news can be to seek out other special needs parents. We need advice and support, even if there’s no diagnosis or the diagnosis is different. My son Jaxson has Kabuki syndrome, for which there is no cure. There are only four other Kabuki families [...]

Raising a child with an incurable genetic disorder is no easy task. Watching your child deal with medical and social problems is heart-wrenching. Even with the advances in medical technology, doctors are still human, parents often go with questions unanswered and families and friends become frustrated with your absence from their lives.  There are many [...]