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A Digital Toolkit for Primary Hyperoxaluria Type 1 (PH1) Caregivers

Whether your child was recently diagnosed with primary hyperoxaluria type 1 (PH1) or has been living with the condition for years, figuring out how to balance their needs and your own can be challenging. That’s why The Mighty created this digital toolkit for caregivers of children with PH1. We hope it helps you better support yourself and your loved ones throughout your PH1 journey. Take what you need, and share it with others too.

Here’s what’s included in The Mighty’s Digital Toolkit for PH1 Caregivers:

  • A mini Mighty guide for practicing self-care as a caregiver.
  • A PH1 H2O tracker to help monitor how much water your child is drinking throughout the week.
  • A printable worksheet to help explain PH1 to your child’s school teachers and nurses.

P.S. Everything included in this toolkit is downloadable, printable and shareable!

Mini Mighty Guide on Self-Care

This mini Mighty guide includes a few gentle reminders for PH1 caregivers wanting to practice self-care. When your needs are taken care of, your loved ones’ are too. Print or download this sheet for yourself when you need some support. 

“Staying Hydrated With PH1” Tracker

Have you ever struggled to ensure your child gets enough water throughout the day? Maybe this will help. Below is an easy-to-use tracker to remind and encourage your child to drink more water during the week. We suggest keeping the tracker in your child’s backpack or on the refrigerator at home so you can update it easily.

Explaining PH1 to Others

PH1 may present challenges at school. That’s why we made this worksheet — designed to equip your child’s school teachers and nurses with the tools they need to better support your child and understand their medical needs. Try using it as a conversation starter with your child’s school personnel. 

What would you add? Share it with us in the comments below.

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