If you’ve carried grief quietly, this one might feel familiar. Blog 10 is now posted. This one touches on the grief of pain, and the process of healing from trauma little by little to find yourself still in physical pain. #KFS #KlippelFeilSyndrome #ChronicPain #Grief
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Living with Klippel-Feil Syndrome. The conversations have gone quiet, but we’re still here, writing a living blog for those who need a voice, a mirror, or a moment of truth. #KFS #KlippelFeilSyndrome
1 reaction Living with Klippel-Feil Syndrome. My blog is a living archive—for those who need it, not those who want to extract. If you’re here to listen, you’re welcome.
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Hi, my name is silverlining101. I'm here because I have Klippel-Feil Syndrome. I have severe neck pain and help is really hard to find.
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I have finally found out the reason as to why I am the way I am. This has not stopped me from travelling, living and experiencing life as it is. This has finally reminded me to put limitations on my physical abilities but I will never stop aiming for my dreams and goals in life.
1 reaction #KlippelFeilSyndrome # hi so I’m currently waiting on a scan of my neck which has developed a lump and swelling on right side , I was diagnosed with spina bifida as a baby later realised it as klippel . I haven’t had any follow up appointments since I was 16 and to be honest as much as it affects me emotionally I haven’t really experienced any physical symptoms aside from shoulder pain and restricted movement of neck and shoulder , my question is is klippel likely to cause more issues as I get older being 41 now and what are said issues, basically I just want to know what I’m up against as I’ve never been told much about the condition thanks laura xx
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