Klippel-Feil Syndrome

It seems to have gone rather quiet on the Klippel-feil syndrome side of the world. Is there anyone else on here still active with Klippel-feil syndrome?

Living with Klippel-Feil Syndrome. The conversations have gone quiet, but we’re still here, writing a living blog for those who need a voice, a mirror, or a moment of truth. #KFS #KlippelFeilSyndrome

Living with Klippel-Feil Syndrome. My blog is a living archive—for those who need it, not those who want to extract. If you’re here to listen, you’re welcome.

Hi, my name is silverlining101. I'm here because I have Klippel-Feil Syndrome. I have severe neck pain and help is really hard to find.

#MightyTogether

I have finally found out the reason as to why I am the way I am. This has not stopped me from travelling, living and experiencing life as it is. This has finally reminded me to put limitations on my physical abilities but I will never stop aiming for my dreams and goals in life.

#KlippelFeilSyndrome

#KlippelFeilSyndrome # hi so I’m currently waiting on a scan of my neck which has developed a lump and swelling on right side , I was diagnosed with spina bifida as a baby later realised it as klippel . I haven’t had any follow up appointments since I was 16 and to be honest as much as it affects me emotionally I haven’t really experienced any physical symptoms aside from shoulder pain and restricted movement of neck and shoulder , my question is is klippel likely to cause more issues as I get older being 41 now and what are said issues, basically I just want to know what I’m up against as I’ve never been told much about the condition thanks laura xx

KFS Stories > #KlippelFeilSyndrome