lersDanlosSyndrome

What right do politicians and bureaucrats have to influence my medical treatment? Due to the legislation that has been put in place, not only can I not have access to medications that help (not make the pain go away, just be manageable) now I have to wait, completely without pain meds, for my specialist to have an opening. Two weeks. All because the law will not allow him to give me a refill without actually seeing me every 30 days. So even though there is nothing whatsoever he can do to help beyond the prescription, we have to waste both our time with monthly, “still hurts like hell? A bit worse this month because something else popped out? That sucks. See you next time.” Appointments. Forget the fact that every day is getting physically harder to get through when medicated, I’m looking at possibly having to call off work for the first time ever because of the pain! And that is completely ignoring the the overwhelmingly toll on my psyche. I’ve been struggling to make myself “keep on keeping on” with what little relief I get normally, and now they’re making the other option look more and more appealing. I really don’t think there’s a whole lot more I can take before something irreparably breaks... sorry to bother everyone, just had to express some of this in the direction of people who might understand... and I don’t have to see the pity in their eyes...