My defining moment came when I could go no further. I'd struggled for years with #EhlersDanlosSyndrome symptoms but neither I, nor any of my doctors knew why. I have both #primary lymphedema and #Lipidema - diagnosed after years of searching for answers. all my doctors diagnosed me as fat, but that wasn't the answer to what was taking me down so fast. My defining moment came when I could no longer use my constantly subluxating arms, hold my head erect for long or walk a reasonable distance. I did the research that led me to the Ehlers-Danlos Society pages where I religiously studied the videos until I came to some understanding of my condition. I own that knowledge now, have a diagnosis and got one shoulder successfuly repaired